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Category Archives: The tube
Knowing when to worry, and when not to
When I was an infant, I had to wear booties attached by a bar. The goal was to straighten out my legs. It worked, but my legs are a bit S-shaped to this day. They curve oddly at the knee, … Continue reading
Posted in motherhood, Stella's eyes, The Patch, The tube
Tagged eye patch, eyeglasses, motherhood, strabismus, toddler, worry
2 Comments
Meet the brave and amazing Ava.
I’d like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to … Continue reading
Posted in Inspiration, motherhood, The tube
Tagged ava, g-tube, GERD, gj tube, mitchondrial disease, The United Mitochondrial Disease Foundation, tube feeding, tube-fed child
2 Comments
More on the risks of NG tubes
A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading
Posted in NG tube, occupational therapy, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, reflux, tube feeding, tube weaning success, weaning
4 Comments
Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
33 Comments
Hooray for Heath, his mom, and inspiring tube weaning success!
Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading
Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, g-tube, g-tube weaning, Germany, Graz method, graz model, markus wilken, ng tube weaning, Posttraumatic Feeding Syndrome, Princess Margaret Hospital in Darmstadt, the crunchy and the smooth, The Institute for Psychology and Psychosomatics of Early Childhood, Tube weaning, tube weaning success, tube-fed babies and children, weaning
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Three cheers for Zander! Oh yeah, AND HIS MOM.
Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading
Three is a magic number
Today is our 3rd anniversary. Cody and I have been married for three years, but together for seven and a half. Though, the last year alone feels more like a decade in some ways. Cody gave me the most thoughtful … Continue reading
Posted in Family update, Life with a baby, The tube
Tagged baby, fatherhood, infant, motherhood, new parents, parenthood, three year anniversary
7 Comments
Stella Enters Single Digits
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over. Okay, I’ll say that after 12 mind-blowing months, it … Continue reading
Posted in Family update, Lessons in parenting, Life with a baby, Milestones, motherhood, NG tube, The tube
Tagged baby, birthday, feeding aversion, feeding issue, first birthday, infant, NG tube, ng tube weaning success, one year old, parenthood, trophy cupcakes, tube feeding, tube weaning success
4 Comments
Support and community for parents of tube-fed children
Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading
Posted in Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, Graz method, graz model, infant, infant nutrition, nasogastric tube, ng tube weaning success, parents of tube fed children, reflux, social network, tube feeding, Tube weaning, tube weaning success, weaning
2 Comments
The truth about moms
On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other’s parenting styles and choices–battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that’s just the tip of the … Continue reading
