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Category Archives: Tube weaning
Blogging. Stella. Me me me!
Feeling anxious. It keeps being said in the media and whatnot (on blogs, probably) that blogging is extremely narcissistic. I’m worried that I’m not measuring up because this blog is only somewhat narcissistic so far. You see, I need to … Continue reading
Posted in Blogging, motherhood, toddler, Tube weaning, vision therapy
Tagged copywriting, parenthood, toddler, tube weaning success, unicorns, vision therapy
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Thank you
So many times, comments from visitors have made me cry. Made me feel like it’s all worthwhile, and that life is just wonderful. You give me hope. You give me faith in the world. Thank you to “CJ’s mommy,” whose … Continue reading
New “tube weaning stories” page
Just a note to say that in this blog’s navigation I’ve replaced the “Stella’s Tube Wean” page with a more broad and helpful “Tube Weaning Stories” page. All of these children’s stories deserved to be more prominent, darn it! I … Continue reading
Posted in Tube weaning
Tagged graz model, ng tube weaning success, tube feeding, Tube weaning, tube weaning success, weaning
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More on the risks of NG tubes
A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading
Posted in NG tube, occupational therapy, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, reflux, tube feeding, tube weaning success, weaning
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Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
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Hooray for Heath, his mom, and inspiring tube weaning success!
Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading
Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, g-tube, g-tube weaning, Germany, Graz method, graz model, markus wilken, ng tube weaning, Posttraumatic Feeding Syndrome, Princess Margaret Hospital in Darmstadt, the crunchy and the smooth, The Institute for Psychology and Psychosomatics of Early Childhood, Tube weaning, tube weaning success, tube-fed babies and children, weaning
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Three cheers for Zander! Oh yeah, AND HIS MOM.
Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading
Meet fearless Frankie and her parents
Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I’d like to introduce you to Francesca and her devoted parents. Their extremely touching and wonderfully written blog, Frankly … Continue reading
Support and community for parents of tube-fed children
Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading
Posted in Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, Graz method, graz model, infant, infant nutrition, nasogastric tube, ng tube weaning success, parents of tube fed children, reflux, social network, tube feeding, Tube weaning, tube weaning success, weaning
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Behold: Tube weaning research and guidelines
When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading
Posted in Inspiration, Research and resources, The tube, Tube weaning
Tagged Austria, baby, bottle feeding, bottle refusal, child, Child & Adolescent Nutrition, dysphagia, enteral feeding, feeding issue, food refusal, g-tube, Gastrostomy, Graz, Graz method, graz model, ICAN, infant, Infant Mental Health Journal, infant nutrition, infantile feeding disorders, Marguerite Dunitz-Scheer, nasogastric feeding tube, nasogastric tube, NG tube, ng tube weaning guidelines, ng tube weaning success, oral aversion, Stella Johnson, tube feeding, Tube weaning research, tube weaning success, tube-fed infants, weaning
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