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Tag Archives: g-tube
Meet the brave and amazing Ava.
I’d like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to … Continue reading
Posted in Inspiration, motherhood, The tube
Tagged ava, g-tube, GERD, gj tube, mitchondrial disease, The United Mitochondrial Disease Foundation, tube feeding, tube-fed child
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Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
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Hooray for Heath, his mom, and inspiring tube weaning success!
Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading
Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, g-tube, g-tube weaning, Germany, Graz method, graz model, markus wilken, ng tube weaning, Posttraumatic Feeding Syndrome, Princess Margaret Hospital in Darmstadt, the crunchy and the smooth, The Institute for Psychology and Psychosomatics of Early Childhood, Tube weaning, tube weaning success, tube-fed babies and children, weaning
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Three cheers for Zander! Oh yeah, AND HIS MOM.
Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading
Behold: Tube weaning research and guidelines
When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading
Posted in Inspiration, Research and resources, The tube, Tube weaning
Tagged Austria, baby, bottle feeding, bottle refusal, child, Child & Adolescent Nutrition, dysphagia, enteral feeding, feeding issue, food refusal, g-tube, Gastrostomy, Graz, Graz method, graz model, ICAN, infant, Infant Mental Health Journal, infant nutrition, infantile feeding disorders, Marguerite Dunitz-Scheer, nasogastric feeding tube, nasogastric tube, NG tube, ng tube weaning guidelines, ng tube weaning success, oral aversion, Stella Johnson, tube feeding, Tube weaning research, tube weaning success, tube-fed infants, weaning
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