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Tag Archives: ng tube weaning success
New “tube weaning stories” page
Just a note to say that in this blog’s navigation I’ve replaced the “Stella’s Tube Wean” page with a more broad and helpful “Tube Weaning Stories” page. All of these children’s stories deserved to be more prominent, darn it! I … Continue reading
Posted in Tube weaning
Tagged graz model, ng tube weaning success, tube feeding, Tube weaning, tube weaning success, weaning
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Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
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Three cheers for Zander! Oh yeah, AND HIS MOM.
Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading
Stella Enters Single Digits
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over. Okay, I’ll say that after 12 mind-blowing months, it … Continue reading
Posted in Family update, Lessons in parenting, Life with a baby, Milestones, motherhood, NG tube, The tube
Tagged baby, birthday, feeding aversion, feeding issue, first birthday, infant, NG tube, ng tube weaning success, one year old, parenthood, trophy cupcakes, tube feeding, tube weaning success
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Support and community for parents of tube-fed children
Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading
Posted in Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, Graz method, graz model, infant, infant nutrition, nasogastric tube, ng tube weaning success, parents of tube fed children, reflux, social network, tube feeding, Tube weaning, tube weaning success, weaning
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Well nourished
Sometimes I worry (shocking, I know) that Stella and I don’t venture out often enough for grand adventures. You know, to the Woodland Park Zoo or Pike Place Market. But then I turn on the vacuum or open the refrigerator … Continue reading
Posted in Baby food, Lessons in parenting, Life with a baby, Milestones
Tagged awesomeness, baby, Baby food, brewer's yeast for babies, cava, flaxseed oil for babies, homemade baby food, infant, infant nutrition, jane iredale foundation, mighty o donuts, motherhood, ng tube weaning success, nine months old, occupational therapy, pagliacci pizza, roro's bbq, spoon feeding, Super Baby Food, tube weaning success, wisdom, yogurt
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Open wide
So, as I reported earlier, we visited Seattle Children’s Hospital this week to see Robin, Stella’s wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with solids. We were worried because she … Continue reading
Behold: Tube weaning research and guidelines
When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading
Posted in Inspiration, Research and resources, The tube, Tube weaning
Tagged Austria, baby, bottle feeding, bottle refusal, child, Child & Adolescent Nutrition, dysphagia, enteral feeding, feeding issue, food refusal, g-tube, Gastrostomy, Graz, Graz method, graz model, ICAN, infant, Infant Mental Health Journal, infant nutrition, infantile feeding disorders, Marguerite Dunitz-Scheer, nasogastric feeding tube, nasogastric tube, NG tube, ng tube weaning guidelines, ng tube weaning success, oral aversion, Stella Johnson, tube feeding, Tube weaning research, tube weaning success, tube-fed infants, weaning
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Nine months
So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that’s not a typo–it’s one of our nicknames for her) celebrated … Continue reading
Posted in Appointments, Bottle feeding progress, Milestones, sleep, The tube, Tube weaning, Weight check
Tagged awesomeness, baby, baby growth percentiles, bottle feeding, feeding issue, formula feeding, GERD, motherhood, new parents, ng tube weaning success, nine months old, pampers peace on earth commercial, parenthood, reflux, Simply Thick, tube weaning success, waterbabies, weaning
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Firsts and fiascos in Boston.
Wow. We just returned from Boston and I honestly don’t know where to begin. It was Stella’s first plane trip and travel experience. In fact, the ordeal adventure was loaded with firsts–for me and Stella Bella. 1.) Stella crawled–really crawled–for … Continue reading
