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Tag Archives: NG tube
Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
33 Comments
Let them eat sugar
I took newly 17-month-old Stella out for ice cream last week. Just me and her. There was no special occasion other than “mama needs ice cream NOW.” We headed out on foot at around 7pm to sneak in our treat … Continue reading
Stella Enters Single Digits
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over. Okay, I’ll say that after 12 mind-blowing months, it … Continue reading
Posted in Family update, Lessons in parenting, Life with a baby, Milestones, motherhood, NG tube, The tube
Tagged baby, birthday, feeding aversion, feeding issue, first birthday, infant, NG tube, ng tube weaning success, one year old, parenthood, trophy cupcakes, tube feeding, tube weaning success
4 Comments
The truth about moms
On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other’s parenting styles and choices–battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that’s just the tip of the … Continue reading
Goodnight, milk.
A couple of weeks ago, I threw out 341 ounces of frozen breastmilk. That was just the bottom shelf. I still need to clear out the top one. It has been six months since the last of it was pumped, … Continue reading
Posted in breastfeeding, Frustration Station, Milestones
Tagged baby, bottle feeding, breast milk, breast pump, breastfeeding, breastmilk, cow's milk protein intolerance, Elecare, feeding issue, formula feeding, motherhood, mothering magazine can kiss my ass, NG tube, reflux, tube feeding
8 Comments
Open wide
So, as I reported earlier, we visited Seattle Children’s Hospital this week to see Robin, Stella’s wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with solids. We were worried because she … Continue reading
Return trip
It’s not an emergency. Nothing is really “wrong.” But we’re about to head back to our old stomping ground: Seattle Children’s Hospital. We’re going there to see Robin, Stella’s occupational therapist. Stella isn’t warming up to solids the way all … Continue reading
Behold: Tube weaning research and guidelines
When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading
Posted in Inspiration, Research and resources, The tube, Tube weaning
Tagged Austria, baby, bottle feeding, bottle refusal, child, Child & Adolescent Nutrition, dysphagia, enteral feeding, feeding issue, food refusal, g-tube, Gastrostomy, Graz, Graz method, graz model, ICAN, infant, Infant Mental Health Journal, infant nutrition, infantile feeding disorders, Marguerite Dunitz-Scheer, nasogastric feeding tube, nasogastric tube, NG tube, ng tube weaning guidelines, ng tube weaning success, oral aversion, Stella Johnson, tube feeding, Tube weaning research, tube weaning success, tube-fed infants, weaning
33 Comments
A drum roll seems inadequate
Today, we took a big step. It could save us a few hundred bucks a month while providing Stella with a better form of nourishment. OR IT COULD RUIN EVERYTHING. You see, Stella’s formula is no longer covered by insurance. … Continue reading
Meet Diego
Back in mid-November, when Stella’s NG tube was put into her cute nose and down into her then-hungry and confused tummy, I was understandably freaked out. I wondered if it was the right thing to do. I worried about how … Continue reading
Posted in Inspiration, The tube, Tube weaning
Tagged awesomeness, baby, feeding aversion, feeding issue, gastroenterology, GERD, gi, nasogastric tube, new parents, NG tube, ng tube weaning success, premature baby, premature birth, reflux, rocio and diego, tube feeding, tube weaning success, weaning
5 Comments
