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Tag Archives: tube feeding
On my parenting journey, and “Far from the Tree.”
My child is strong and healthy. That said, at just four years of age, she has already taken part in occupational therapy (OT), vision therapy (VT), cranial sacral therapy, and yoga therapy (also called Integrated Movement Therapy or IMT). Her … Continue reading
Meet the brave and amazing Ava.
I’d like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to … Continue reading
Posted in Inspiration, motherhood, The tube
Tagged ava, g-tube, GERD, gj tube, mitchondrial disease, The United Mitochondrial Disease Foundation, tube feeding, tube-fed child
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New “tube weaning stories” page
Just a note to say that in this blog’s navigation I’ve replaced the “Stella’s Tube Wean” page with a more broad and helpful “Tube Weaning Stories” page. All of these children’s stories deserved to be more prominent, darn it! I … Continue reading
Posted in Tube weaning
Tagged graz model, ng tube weaning success, tube feeding, Tube weaning, tube weaning success, weaning
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More on the risks of NG tubes
A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading
Posted in NG tube, occupational therapy, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, reflux, tube feeding, tube weaning success, weaning
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Taking a stand against tube-feeding crimes and negligence
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading
Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning
Tagged criminal negligence, feeding aversion, feeding issue, g-tube, GERD, graz model, markus wilken, medical negligence, nasogastric tube, NG tube, ng tube weaning success, occupational therapy, reflux, seattle children's hospital, tube feeding, tube weaning success, tube-fed babies, tube-fed children, weaning
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Meet fearless Frankie and her parents
Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I’d like to introduce you to Francesca and her devoted parents. Their extremely touching and wonderfully written blog, Frankly … Continue reading
Stella Enters Single Digits
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over. Okay, I’ll say that after 12 mind-blowing months, it … Continue reading
Posted in Family update, Lessons in parenting, Life with a baby, Milestones, motherhood, NG tube, The tube
Tagged baby, birthday, feeding aversion, feeding issue, first birthday, infant, NG tube, ng tube weaning success, one year old, parenthood, trophy cupcakes, tube feeding, tube weaning success
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Support and community for parents of tube-fed children
Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading
Posted in Research and resources, The tube, Tube weaning
Tagged baby, feeding aversion, feeding issue, GERD, Graz method, graz model, infant, infant nutrition, nasogastric tube, ng tube weaning success, parents of tube fed children, reflux, social network, tube feeding, Tube weaning, tube weaning success, weaning
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The truth about moms
On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other’s parenting styles and choices–battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that’s just the tip of the … Continue reading
Goodnight, milk.
A couple of weeks ago, I threw out 341 ounces of frozen breastmilk. That was just the bottom shelf. I still need to clear out the top one. It has been six months since the last of it was pumped, … Continue reading
Posted in breastfeeding, Frustration Station, Milestones
Tagged baby, bottle feeding, breast milk, breast pump, breastfeeding, breastmilk, cow's milk protein intolerance, Elecare, feeding issue, formula feeding, motherhood, mothering magazine can kiss my ass, NG tube, reflux, tube feeding
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