Category Archives: Research and resources

Takeaways from Dr. Susan Barry’s Web Interview (School Crossings: How the System Lets Down Children with Vision Problems)

First off, I have to admit that I entered the web meeting eight to nine minutes late. This will be the opposite of shocking to anyone who knows me. I was infuriated! I’d been anticipating this thing to a pathetic … Continue reading

Posted in Inspiration, motherhood, Research and resources, Stella's eyes | Tagged , , , , , , , , , , , , , | Leave a comment

Free webinar by Susan Barry: How the system lets down children with vision problems

Here we go again. Like tube feeding, vision is an area in which children aren’t getting the care and solutions they need and deserve. Stella just started patching, because her brain was starting to favor her right (strong) eye. And it’s already become … Continue reading

Posted in Research and resources, Stella's eyes, The Patch, toddler | Tagged , , , , , , , , , , , | 1 Comment

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading

Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

Confident Mom Interview #3: Lenore Skenazy of Free-Range Kids

Do you remember the media hubbub from a couple years back, when a woman labeled by some as “America’s Worst Mom” let her kid ride the NYC subway all by himself? I thought so. I chatted with Lenore Skenazy of … Continue reading

Posted in Confident mom interview, Lessons in parenting, motherhood, Research and resources | Tagged , , , , , , , , , , , , , | 6 Comments

Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading

Posted in Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 2 Comments

Behold: Tube weaning research and guidelines

When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading

Posted in Inspiration, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 33 Comments