First off, I have to admit that I entered the web meeting eight to nine minutes late. This will be the opposite of shocking to anyone who knows me. I was infuriated! I'd been anticipating this thing to a pathetic degree and just finished Dr. Susan Barry's Fixing My Gaze, a godsend of a book… Continue reading Takeaways from Dr. Susan Barry’s Web Interview (School Crossings: How the System Lets Down Children with Vision Problems)
Here we go again. Like tube feeding, vision is an area in which children aren't getting the care and solutions they need and deserve. Stella just started patching, because her brain was starting to favor her right (strong) eye. And it's already become clear (fun with puns!) that without extra effort and research on my part, her outcome,… Continue reading Free webinar by Susan Barry: How the system lets down children with vision problems
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Remember Zander? Well he's got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I've been lacking, though I've so wanted to muster it! But then I realized that I can't tell… Continue reading Hooray for Heath, his mom, and inspiring tube weaning success!
Do you remember the media hubbub from a couple years back, when a woman labeled by some as “America’s Worst Mom” let her kid ride the NYC subway all by himself? I thought so. I chatted with Lenore Skenazy of Free-Range Kids one recent Sunday afternoon as she made chicken soup from scratch—and no. Sadly,… Continue reading Confident Mom Interview #3: Lenore Skenazy of Free-Range Kids
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
When is the last time a research paper made you cry? Around the time of Stella's wean, and since then, I've come across information that moved me on many levels. I'd like to pass along these sought-after papers to as many parents (of children and babies with feeding aversions and NG tubes or g-tubes) as… Continue reading Behold: Tube weaning research and guidelines