Category Archives: Tube weaning

To Parents in the Storm

I don’t write about Stella very much anymore. Not because there’s nothing inspiring to share, but for fear of crossing boundaries and exposing a person who is all her own. That said, I know that there are still parents around the … Continue reading

Posted in Family update, Lessons in parenting, Milestones, Stella's eyes, Tube weaning, vision therapy | 7 Comments

Blogging. Stella. Me me me!

Feeling anxious. It keeps being said in the media and whatnot (on blogs, probably) that blogging is extremely narcissistic. I’m worried that I’m not measuring up because this blog is only somewhat narcissistic so far. You see, I need to … Continue reading

Posted in Blogging, motherhood, toddler, Tube weaning, vision therapy | Tagged , , , , , | 6 Comments

Thank you

So many times, comments from visitors have made me cry. Made me feel like it’s all worthwhile, and that life is just wonderful. You give me hope. You give me faith in the world. Thank you to “CJ’s mommy,” whose … Continue reading

Posted in Inspiration, Tube weaning | Tagged , | Leave a comment

New “tube weaning stories” page

Just a note to say that in this blog’s navigation I’ve replaced the “Stella’s Tube Wean” page with a more broad and helpful “Tube Weaning Stories” page. All of these children’s stories deserved to be more prominent, darn it! I … Continue reading

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More on the risks of NG tubes

A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading

Posted in NG tube, occupational therapy, The tube, Tube weaning | Tagged , , , , , , , | 12 Comments

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading

Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

Three cheers for Zander! Oh yeah, AND HIS MOM.

Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading

Posted in Inspiration, The tube, Tube weaning | Tagged , , , , , , , , , , | 8 Comments

Meet fearless Frankie and her parents

Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I’d like to introduce you to Francesca and her devoted parents.  Their extremely touching and wonderfully written blog, Frankly … Continue reading

Posted in Inspiration, toddler, Tube weaning | Tagged , , , , , , , , | 2 Comments

Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading

Posted in Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 2 Comments