Awkwardly disagreeing with the status quo since 2008.
I don't write about Stella very much anymore. Not because there's nothing inspiring to share, but for fear of crossing boundaries and exposing a person who is all her own. That said, I know that there are still parents around the world reading this blog because their baby or young child is facing challenges with feeding… Continue reading To Parents in the Storm
Feeling anxious. It keeps being said in the media and whatnot (on blogs, probably) that blogging is extremely narcissistic. I'm worried that I'm not measuring up because this blog is only somewhat narcissistic so far. You see, I need to write about things in addition to vision therapy but I've been afraid to. So I… Continue reading Blogging. Stella. Me me me!
So many times, comments from visitors have made me cry. Made me feel like it's all worthwhile, and that life is just wonderful. You give me hope. You give me faith in the world. Thank you to "CJ's mommy," whose comment I pasted below, and to all the other amazing parents who've taken time out… Continue reading Thank you
Just a note to say that in this blog's navigation I've replaced the "Stella's Tube Wean" page with a more broad and helpful "Tube Weaning Stories" page. All of these children's stories deserved to be more prominent, darn it! I plan to fill this page with links to dozens and dozens of weaning stories (with… Continue reading New “tube weaning stories” page
A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Remember Zander? Well he's got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I've been lacking, though I've so wanted to muster it! But then I realized that I can't tell… Continue reading Hooray for Heath, his mom, and inspiring tube weaning success!
Today isn't just another Tuesday. It's a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can't tell you how huge this is. Due to one of the most severe cases of frank aspiration ever seen at… Continue reading Three cheers for Zander! Oh yeah, AND HIS MOM.
Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I'd like to introduce you to Francesca and her devoted parents. Their extremely touching and wonderfully written blog, Frankly Frankie, documents Francesca's struggles with eating. They need our morale support--right now. Adorable two-year-old Francesca,… Continue reading Meet fearless Frankie and her parents
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
