I don't write about Stella very much anymore. Not because there's nothing inspiring to share, but for fear of crossing boundaries and exposing a person who is all her own. That said, I know that there are still parents around the world reading this blog because their baby or young child is facing challenges with feeding… Continue reading To Parents in the Storm
I will miss her bracing brisk air Sharp crystals and soft mounds of snow A rest from heat and pause in growth Cold quiet that heightens your aliveness And insulates the roots of the trees We have softened ourselves flat In the warmth of convenience Except in plastic decorative odes To ancient seasonality and rhythm… Continue reading Winter is leaving
A short, simple poem came to me today. It emerged out of nowhere, after some rainy gardening. It also happened to appear amid ongoing efforts to stay positive despite a barrage of cold news. Stella still faces some challenges but is doing well. She just started second grade (said her first day was "awesome!") and achieved 10/10 in 3D vision testing for… Continue reading I am not a poet but
As you'll witness at any mall in the United States, the mental states of humanity reside on a vast spectrum. Our brains are not so easily compartmentalized from one another—and I don’t care what the DSM says. I recently bought a white ceramic garlic holder from Crate and Barrel. Joyce helped me by holding my clean,… Continue reading Where do you keep your garlic?
I posted the following kitchen renovation log entries on Facebook over the span of a few months and they developed a bit of a following. By that I mean a couple dozen people who know me seemed to love them. I have no doubt they will find their place on the nation's historical register, alongside… Continue reading Kitchen Renovation of Liberty
Well, hello there! First I want to apologize for not getting back to those of you who have reached out over the past couple of years. I'm feeling ready to re-engage a bit with the blog, and share more of Stella's progress and our family journey. I hope to hear from you, too. For now, I… Continue reading A blessing and a curse
(Note: This is not a sponsored post. I don't get near enough traffic to attract Disney's attention.) In May, after our first three months of OT and PT with Stella, we splurged on a trip to Disneyland. We'd been worrying and agonizing about new realizations and a new path for Stella. We'd been working hard,… Continue reading Something Amazing Happened at Disneyland.
I'm growing ever more concerned about Cody and myself. On Wednesday morning I had a crying meltdown after driving way up north for an appointment for Stella, which I thought had been squeezed in before preschool that day but was actually squeezed in before OT yesterday. I completely forgot about her 25-minutes-away PT appointment on… Continue reading Dark circles and bright spots
I know that our efforts in OT and PT have really just begun, but I swear I already see little buds that will one day burst into blossoms. Slowly, steadily, surely. I see her ever-so-smoothly writing letters on the chalkboard wall with a nice grip. She is sounding out the silly non-words she lays out… Continue reading Spring
After weeks of evaluations, we are now in the thick of OT and PT appointments and daily OT and PT work at home, and sensory activities, on top of three types of patching to help fight the double vision Stella experiences. More VT (vision therapy) will come after we finish laying the foundation with OT… Continue reading Onward