"Anisometropia" sounds like a mythical city built out of licorice, but it's actually a vision condition that Stella has dealt with all her life in which the eyes' refractive powers differ. On Friday, however, we picked up her new eyeglasses in which the prescription is the same in both lenses. This is the first time… Continue reading The value of seeing differently
If you’ve ever kept chickens, you understand life’s imperfect trade-offs of risk and reward in a more intimate way than most. And if you’ve ever medicated a chicken, you understand the delicate tipping point at which fear-fueled fight-and/or-flight teeters into resignation to fate. There’s something eye-opening about caring for a living creature so different from… Continue reading The risk and rewards of giving a flock
As we look to rebuild after everything fell apart, once again, I'm struggling to find the thread that ties it all together. The entrenched feeding aversion that led to an NG tube as a newborn that brought us to a new understanding of autonomy. The terror of seeing her eyes suddenly and persistently cross, requiring… Continue reading Another education
The inside-out view from the fort in the woods at the end of the road. When Stella was three, she was head-over-heels into ballet. She took creative dance classes with some toe pointing and ballet basics woven in. At home, she'd wear her tutu and watch YouTube clips of internationally renowned ballet companies, memorizing the… Continue reading Down time. And looking up.
Ableist people insist that Greta Thunberg is a puppet. If you ask me, after I catch my breath lost from laughing, it's not possible. Not rooted in reality. It's also deeply insulting and misguided to assume a lack of agency in this bright and courageous girl. The doubters haven't the faintest hint of a clue… Continue reading Autism as superpower: Ode to the Gretas and Stellas
Stella is a toe-walker. She's been tiptoeing around for as long as I can remember. Prancing, really. Her gait has been so bouncy and adorable, so evocative of a little ballerina, that her physical effervescence has charmed even sour onlookers. I've been kindling a small flame of worry about her overworked and constantly clenched toes, despite an… Continue reading How vision therapy is saving Stella’s toes, and then some.