New “tube weaning stories” page

Just a note to say that in this blog's navigation I've replaced the "Stella's Tube Wean" page with a more broad and helpful "Tube Weaning Stories" page. All of these children's stories deserved to be more prominent, darn it! I plan to fill this page with links to dozens and dozens of weaning stories (with… Continue reading New “tube weaning stories” page

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence

Three cheers for Zander! Oh yeah, AND HIS MOM.

Today isn't just another Tuesday. It's a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can't tell you how huge this is. Due to one of the most severe cases of frank aspiration ever seen at… Continue reading Three cheers for Zander! Oh yeah, AND HIS MOM.

Stella Enters Single Digits

Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is "HOLY SHITBALLS!" Over and over and over. Okay, I'll say that after 12 mind-blowing months, it feels like heaven to see her thriving, running, throwing, walking, laughing, smiling, waving, chowing, bye-bye-ing… Continue reading Stella Enters Single Digits

Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues."  There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children

Well nourished

Sometimes I worry (shocking, I know) that Stella and I don't venture out often enough for grand adventures. You know, to the Woodland Park Zoo or Pike Place Market. But then I turn on the vacuum or open the refrigerator door, and she goes absolutely bonkers with joy and excitement, and suddenly I'm certain in… Continue reading Well nourished

Open wide

So, as I reported earlier, we visited Seattle Children's Hospital this week to see Robin, Stella's wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with solids. We were worried because she wasn't eating as much as a nine-month-old is "supposed to" by now. She had not… Continue reading Open wide

Behold: Tube weaning research and guidelines

When is the last time a research paper made you cry? Around the time of Stella's wean, and since then, I've come across information that moved me on many levels. I'd like to pass along these sought-after papers to as many parents (of children and babies with feeding aversions and NG tubes or g-tubes) as… Continue reading Behold: Tube weaning research and guidelines

Nine months

So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that's not a typo--it's one of our nicknames for her) celebrated her nine-month birthday on Sunday. The occasion was marked with a Waterbabies class (with a… Continue reading Nine months

Firsts and fiascos in Boston.

Wow. We just returned from Boston and I honestly don't know where to begin. It was Stella's first plane trip and travel experience. In fact, the  ordeal adventure was  loaded with firsts--for me and Stella Bella. 1.) Stella crawled--really crawled--for the first time. This is big. As elated as I am that Stella triumphantly reached… Continue reading Firsts and fiascos in Boston.