toddler

Because we just can’t get enough therapy.

Posted on by amberhj

It’s official. Today, I scheduled Stella for weekly, ongoing vision therapy. I feel victorious! As in, “We’re going to the Super Bowl, baby!” (I probably need to get out more.) You see, our second opinion (the first being Seattle Children’s Hospital, where vision therapy was never mentioned, and the third being our current doctor) told us that Stella was far too young to do vision therapy. (How many times can I say “vision therapy?” Let’s see, shall we?*) Also, as I’ve said a million times lately, I just finished reading Fixing My Gaze, and it got me so pumped up about vision therapy that I felt physically uncomfortable with the knowledge that we weren’t pursuing vision therapy. And not only has Stella been taking off her glasses more, she’s been staring into space and rubbing her eyes frequently, too, as she did before getting glasses. Now I’ll have someone to gauge Stella’s vision regularly, someone I can grill in person and upon whom I can dump all my concerns on a weekly basis. Hooray for vision therapy!

So every Wednesday morning, we’ll be headed out for some mindblowingly fun “eye games” (aka “vision therapy”). That’s my brilliant branding for this new adventure. Wearing an eye patch is currently called, “the eye patch game.” I know, I know. My advertising background is coming through in its full luminescence here, I’m a genius and I put Don Draper to shame. Yes, yes and yes.

Upon confirming our slot, the vision therapy office emailed me a preparatory doc entitled, “VISION THERAPY: What you need to know.” Highlights include:

  • Vision therapy programs are individualized. “Each session consists of 45 minutes of one on one care combined with a program of daily home oriented therapy.”
  • We will be given “vision therapy handouts and supplies for home therapy use that will change periodically.”
  • “The majority of patients in a once a week program are in vision therapy for nine months to one year.”
  • Progress evaluations must be scheduled every three months regardless of the number of vision therapy sessions that have taken place during that time.

I am totally bringing chocolate chips, maybe even a baker’s dozen from Trophy Cupcakes, to each session. Whatever it takes to reward and encourage cooperation! Stella is 24 months old and is going to be asked to “focus” (in one way or another) for 45 minutes straight. I know she can do it. I’ve seen her concentrate intensely on an enormous ice cream cone for at least that long. I know we can make it work and I know this doctor knows what she’s doing and is fully aware that Stella just turned two. I know I know I know. But (shockingly) I’m a little nervous. Kind of like that time I bitched endlessly and fought like hell to get a promotion, then when it was finally handed to me, I freaked out and realized I didn’t know what the hell I was doing. “Idiots! What were they thinking giving me all these new responsibilities! I’m not ready for this! Oh wait…”

But seriously, it’s all coming together. Another bit of encouragement emerged on Monday evening at our PEPS (Program for Early Parent Support) gathering. (PEPS is just a bunch of parents-to-be that get tossed into a group that starts meeting weekly once the babies are born, within a month or so of each other. Basically, for new parents, it’s a way of feeling less insane.) Turns out one of the mothers in our PEPS group had double vision as a child, mainly when tired–fatigue is also what triggers Stella’s eye crossing. She admitted that in an attempt to see clearly, she wound up walking around with one eye closed. Her mother got used to seeing this, and like most young kids she was very good at compensating for the vision problem. As a result, she said her mom pretty much let it go until a friend called her out on it. She was told to wear a patch, but her parents opted for vision therapy instead! My kind of people! She did vision therapy for a year at around age six and that did the proverbial (literal?) trick–it’s just amazing to me. She’s had control of her eyes, and no double vision, since. Her recollection is that the sessions were fun, with engaging activities, but that she felt very tired afterward. And, because apparently she can read minds and intuited my concern about Stella’s age, she mentioned that while she was school age during her vision therapy, kids of all ages could found in the waiting room. (Thank you, PEPS pal.)

This sort of discovery keeps happening! Stella’s glasses and patch have been the gateway to all kinds of stories about patching and eye crossing and visual whatnot from just about everyone we know, and even some we don’t. It’s news to us but apparently everyone has a sibling or close relative who faced the same type of vision issues in childhood. I should’ve known! In Fixing My Gaze, neurobiologist extraordinaire Susan Barry points out that about one in 25 children has strabismus or a binocular vision problem. That’s roughly one in every classroom. It’s become clear that Stella is in good company, and it all feels so normal now. Which blows my mind. Normal and I aren’t close but I’ve always wanted to get to know him. Some say he’s boring but I find him absolutely fascinating!

One other bit of insight I took away from that vision therapy handout: This shit is going to be expensive. Did I mention I’m looking for freelance writing gigs? Go ahead and picture me, out on the internet highway, holding a shabby virtual sign that reads, “WILL WRITE FOR VISION THERAPY.” See? Completely normal.

P.S. Found this at covd.org, a “World Health News Today” segment on vision therapy for children.

* Tally: 19 “vision therapy” mentions. 20 if you count that one. I can totally do better. Vision therapy! 21.

Stella’s weighty two-year check-up.

Posted on by amberhj

So Stella had her two-year check-up today. She received two shots, a delicious wooden tongue depressor, fabulous height and weight percentiles, and a small bit of forgivable misinformation. I’m not sure how I will broach the latter with the doctor, but I plan to do that soon.

To kick things off, he asked about Stella’s vision. I explained the high-level details about her glasses prescription, patching, and the plan to do vision therapy in order to get her eyes to work together. He nodded, remarked that his brother had ambylopia, and said that we’ll probably have to patch (and do vision therapy, I suppose) intensively for “a long time.” He said that the pressure is on and at the same time the road long because it’s an eight-year process. After age 8, he explained, there’s nothing you can do for the weak eye because the brain shuts down the associated neurons. Yet I just read in the extremely well-researched Fixing My Gaze that this is actually not the case for most “strabismics.” The idea of a critical early window for correction of ambylopia and other strabismus-related vision issues has been shot down by Dr. Susan Barry (author of Fixing My Gaze) and other experts. Don’t get me wrong–I’m not flipping out about this contrasting bit of medical advice. I know that treating eye issues early is an excellent idea that improves outcomes. I’m not at all upset with the well-meaning doctor but I want to offer him relevant resources so that he may better  guide and give hope to other patients.

Anyway… here are the numbers:

Stella weighs 27 pounds, which puts her between the 50th and 75th percentiles.

She’s 36 inches tall, which lands her at the 95th percentile.

I know it’s completely batshit insane, but both Cody and I got totally verklempt when we heard these numbers. I know. I know. They don’t even really matter. I know. And I also know you’re thinking, “Why? Why on earth would we still have such a reaction? What is WRONG with you people?”

Sigh. Actually, we’ve discovered a new diagnosis in our family and I will touch on that in a future post. It explains so much. But for now, I’ll expound upon our insanity regarding Stella’s weight. Worry lingered because many openly note how lean Stella is, and those comments can really come across the wrong way and reinforce old fears. Because sometimes she’s too busy to eat and we see that through a filter of our distant tube-feeding past rather than viewing it as the normal toddler behavior it is. Because she just went on a long trip to the east coast, started wearing an eye patch, had two pesky gastrointestinal bugs in the past four weeks, and has been known to throw eating pretty much out the window in the face of disruptions. Because despite our intellectual understanding that she has long been healthy and happily eating to fuel perfectly Stella-appropriate growth, we remained a little too vigilant.

To his immense credit, the doctor must have understood the essence of all this. He paused to celebrate her growth, acknowledged all we’d been through when she was an adorable but feeding-averse baby, and then he smiled at me and said, “It’s over.” Those words hit me like a truck. This is a new era. She’s two. She is three freaking feet tall! And she’s fine. Glasses, eye patch, temper, and all. I feel it in my bones now. Worry doesn’t ever go away when you’re a parent, but right now, for the first time perhaps since Stella was born, I know she is okay. We are okay. It’s all okay.

I get it. For real this time. Pinky swear!

Stella at FarFar's in Duxbury

Stella ate her weight (27 pounds) in deliciously high-butterfat ice cream at FarFar's Danish Ice Cream Shop in Duxbury, MA.

Stella is two.

Posted on by amberhj

Stella is two. She wishes she lived at the beach.

Stella is two. She wishes she lived at the beach.

Stella turned two years old last week, during our beach vacation. She’s still singing happy birthday to herself, talking about birthday cake, and reminiscing about blowing out candles and good times with her “Happy Birthday balloon with smiley faces.” The balloon was accidentally released into the sky, but the sight of it drifting to ever more impossible heights pleased everyone, including Stella, and somehow seemed appropriate and celebratory. I know what you’re thinking. “How nice!” and “Hopefully no sea animals were killed by the balloon remnants.”

So Stella’s two now. All of sudden, she talks in complete sentences, giving crucial information, and answering questions. (Yeah, she shouts commands, but mastered that long ago. I guess they’re just more specific now.) Though she can string words together like a champ, it’s the short one-liners I enjoy most. Must be the advertising copywriter in me. Some examples of dialogue:

Me, in response to her crying: “What’s wrong?”
Stella: “My belly hurts! And my knee.”

or

Me: “Where are your glasses?”
Stella (walks over to the table, where her specs sit): “Right there!”

or

Stella: “I’m running! I’m running down the street!”
Me: “Yes you are running! Running down the street!”

or

Stella (returning to room after leaving for 5 seconds): “I’m BACK!”

Now that Stella is two, she treats her glasses with more care. She usually takes them off with two hands and carefully folds them before handing them to me. We switched to using magic tape over her right lens, instead of a solid patch, at her ophthalmologist’s suggestion. That’s made patching harder, I think because her right eye is still getting input but it’s really bad input, instead of being totally blocked out. But overall, she’s patching like a champ. When she peeks over the top of the glasses, I say “No peeking,” and that usually stops it at least for a little while. I use screen time as the “patch game”… so if she peeks while watching say, “Here Comes Science” DVD, I say “No peeking,” and if she peeks again, I turn off the TV and say, “You’re peeking so the patch game is over.” It works pretty well! Stella’s doctor was very helpful in coming up with strategies like these.

Stella really likes to nap. She asks to nap often. I’ve heard patching causes strain that can make kids cranky and tired. Plus, we went on a long vacation that involved a three-hour time change. In any case, this kid knows when she’s tired, and I totally appreciate that.

Her raw/giant-carrot-chomping phase seems to have waned, but Stella is now eating lemons like they’re apples, waxy rind and all. Her current favorite foods are: chocolate ice cream, mac and cheese, vanilla ice cream, extra cheesy mac and cheese, sliced almonds, peaches, cheese in any form, ice cream, cottage cheese, bagels, and carrots. And ice cream and mac and cheese. We are so alike in some ways.

We gave her a really cute wooden play kitchen center thingee for her birthday. She loves it–washing dishes and putting lids on pots, turning stove knobs, and removing the faucet. I’ve been letting her play with dried beans and bowls and my large kitchen utensils for a while. She’s really kicking things up a notch now and pretending to cook. Though she hasn’t made anything but mac and cheese yet, I expect her to branch out soon, menu-wise.

Stella is completely, 110% obsessed with the aforementioned “Here Comes Science” DVD featuring music videos for science-centric songs by They Might Be Giants (TMBG). Against my idealistic intentions, I let her watch it every day, because it’s an effective way of launching the “eye patch game” (the game? wearing her patch). During vacation, she watched it two or three times a day. She watched more TV that week than the rest of her life combined. She was teething, jet-lagged, patching, and got a fever and gastro bug, so I just let her go nuts with it (though at times I really did just have to start cutting her off). It was all worth it because now I get to hear appropriately bespectacled Stella belt out scientific yet catchy gems such as:

“ROY G. BIV is a colorful man!”

“STEEEEEAM is a GAS!”

“Meet the elemeeeeeents!”

She is fiery and fabulous and has me by the balls. She’s sweet and strong and fast as lightening. She’s a ruthless tyrant and cuddly snuggler. A monkey and a mastermind. She’ll read book after book after book until the cows come home, then happily “moo” right along with them. I may be diagnosed with severe OCD for admitting this, but I say, mostly in my head but sometimes out loud, at least hundred times a day in the exact same way, “I sure do love my Stelly girl.” I really, really, really do.

***

For your enjoyment, in celebration of Stella’s 2nd birthday, here are the “music videos” (do they still call them that?) corresponding with the lyrics above:

ROY G. BIV

MEET THE ELEMENTS

SOLID LIQUID GAS

I’ll post a birthday pic

Free webinar by Susan Barry: How the system lets down children with vision problems

Posted on by amberhj

Here we go again. Like tube feeding, vision is an area in which children aren’t getting the care and solutions they need and deserve. Stella just started patching, because her brain was starting to favor her right (strong) eye. And it’s already become clear (fun with puns!) that without extra effort and research on my part, her outcome, even though we are patching as directed, would be far less than optimal. Thankfully, I have the time and ability and insurance coverage to make it all happen. But I keep wondering, what about the many parents of children with vision and feeding tubes and other health issues who don’t?

Luckily for us anyway, three recent and perfectly timed events have made me feel that I’m on the right track in terms of how to approach Stella’s treatment…

1.) We recently chose a new eye doctor for Stella (our third opinion became our number one choice!) who emphasizes vision therapy in treating eye issues like Stella’s (conditions like strabismus, accommodative esotropia, ambylopia, etc. etc.). She was vastly superior to the others in terms of her attentiveness to Stella as a human being, her ability to do vision therapy with the very young (our second opinion did vision therapy, but said Stella wouldn’t be eligible for years), and her support and tips on how to patch successfully. Seattle Children’s Hospital? They just handed me some adhesive patches to stick on Stella’s almost-two-year-old eyes, with almost no explanation or and certainly no acknowledgement of how big a deal it was, noting only that patching is “not that bad.” Bullshit.

2.) I’m currently reading a ray of hope in paperback form, Fixing My Gaze by neuroscientist Susan Barry. She couldn’t see in 3D until her late 40’s (she had strabismus from early on, like Stella). The ability to see in three dimensions affects life in a myriad of ways, including the abilities to read, drive and play most sports. The book is as much about neuroplasticity as it is about vision, and I have found most of it fascinating (some of it a bit dense and technical and hard to follow). It has opened my eyes (the puns are too easy to resist here, sorry) in so many ways.

3.) Yesterday, I received an email from Stella’s new eye doctor telling me (and all her patients) about a free webinar being given by Barry, author of Fixing My Gaze, on Thursday. I was thrilled! The email, besides letting me in on a great opportunity to learn from a true knowledge leader in the field, confirmed that we’d found one of the rare doctors who can help Stella achieve her own personal best in terms of vision.

The meeting’s name pretty much says it all: “School Crossings: A Neurobiologist’s View of How Our System Fails Children With Vision Problems.” I was so thrilled to find out about this, and again, to get assurance that we’d found a wonderful doctor for Stella. One of the rare few who are truly informed about vision therapy, the kind that helped Barry see the world in full, volumous beauty.

I have only a basic understanding at this point, though it’s growing all the time. But most opthalmologists (including the one we saw at Seattle Children’s) and optometrists seem to heavily rely on patching (often alone) to address situations where the brain is favoring one eye, as is beginning to happen with Stella. When the vision imbalance is left untreated, blindness in the weak eye is likely. However, patching is not a real solution or adequate treatment for many, as upon completion of occlusion, the brain slowly reverts to favoring the same eye. Both eyes are strong after months or years of patching, or have equalized (sometimes the strong eye deteriorates due its suppression) but the brain has not learned to use the eyes together. Vision therapy is needed to get the formerly weak  (“lazy” or ambylopic) eye to coordinate with the  strong eye and create a complete, stereopic view of the world. Proper therapy often results in a long-term cure, enabling 3D vision and other vast improvements. So many children are having to settle for significant, even quality-of-life-reducing vision impairment when in fact, they could see major improvement or perhaps complete resolution of their issues.

Many doctors still believe that there is a small window in early childhood during which eye problems must be addressed, lest be rendered irreversible. Barry’s research and personal experience shatter this falsehood. For the benefit of children like Stella, Barry is shouting her discoveries from the mountaintop, and I am extremely grateful. On the other hand, as we recently embarked on the patching journey, which I was not expecting at all–I was truly blindsided (ugh, another pun?), the book has scared me and made me cry. It’s made me realize the full scope of how Stella’s vision and life experience could be impacted if she is not properly supported. Seriously, I’ve been listening to Celine Dion’s “That’s the Way It Is” and bawling, about once a day. And I’m not a Celine Dion type of person. I’m a Neko Case fanatic. But, “it’s an uphill climb and I’m feeling sorry, but I know it will come to you, yeah” kind of hits the nail on the proverbial, three-dimensional head. I’m working hard and it feels like, once again, there’s a lot on the line and if I don’t stay vigilant and question everything every doctor tells me, Stella will suffer.

Anywho, I’ve signed up for the webinar and encourage other parents of children facing visual challenges to do the same! Virtual “seating” is limited. I will blog about the talk here, in case you miss it. The details, from the original email announcement from the College of Optometrists in Vision Development (COVD):

School Crossings: A Neurobiologist’s View of How Our System Fails Children With Vision Problems
 
Hear Dr. Susan Barry answer questions about difficult school experiences that resulted from her vision problems; how, for example, she was mislabeled as a low aptitude student and assigned to a special problems class, and what her mother did to help her child succeed. And more….. including what you can do to help your child succeed!

TO REGISTER FOR THE MEETING:  Go to www.joinawebinar.com, fill in the meeting ID number 547-423-251 and your email address, click on “CONTINUE,” then fill out the brief form that comes up next and at the bottom of that screen be sure to click on “REGISTER.” 
If you have ANY difficulty registering or any problems during the webinar, contact TECH support for gotowebinar.com at 800-263-6317.

Click here to read the full press release, including more information about Susan Barry (aka “Stereo Sue”).

Back into battle! I think I’ll call it “Operation Shark Patch.”

Posted on by amberhj

I’m not even going to pretend to be positive right now. I’ll get there. But not yet. Because I’ve just been asked to do the equivalent of putting mascara on a shark. For hours each day.

Yesterday we found out that Stella is starting to favor her right eye–her left eye is just ever so slightly starting to be tuned out by the brain. So we have to patch Stella’s right eye for three to four hours daily, to force her slacker eye to work harder and get tuned back in. My first, very gentle attempts at encouraging patch use reminded me of the horrors of inserting Stella’s NG tube into her nose when she was three months old. The screaming and utter rage and fear and defiance. She will not let me stick that thing to her face–not even if it’s pink and red with music notes and hearts on it. No. Way. So I’m taking a step back and re-grouping. Ordering books about patching and pirates. Buying her a pirate costume and a DVD featuring a cast of patched puppets. Ordering five different types of patches–namely, a pirate-style patch, two styles of cloth patches that go over the glasses, and two styles of cloth patches that go under the glasses. Anything but adhesive on Stella’s skin. Seriously, F THAT. Been there, done that, and have pictures of redness and irritation to prove it. I’m not even going to TRY to patch Stella again until my patch propaganda has been absorbed, and the non-sticky patches are in hand.

Yeah. So I’m just going to go ahead and say that this blows. I was blindsided by this news in yesterday’s follow-up appointment at Seattle Children’s ophthalmology. I didn’t think this was on the horizon for Stella. Yes, a military metaphor is probably wildly inappropriate in this situation but I can’t help it: I thought we’d won the war. I had a “MISSION ACCOMPLISHED” banner hanging in our living room. Through much “strategerizing”, focus, effort, and expenditures, we got her to wear her glasses! Her eyes stopped crossing! But holy crap there is a huge battle is ahead. Could it be our toughest yet? Doesn’t matter. We have no choice! To save Stella’s vision, particularly that of her weaker left eye, we must patch her strong eye. No effing way am I going to let her eyesight and quality of life go downhill. Not when there is something I can do about it! Even if it’s as insane and seemingly impossible as putting an eye patch on the eye of a small tornado.

Guess I better set my ring tone to “Eye of the Tiger,” smear on some war paint, and do some push-ups and wind-sprints and shit. Oh wait–this is the new type of war. Where brute force is obsolete. I must infiltrate the mind and culture of my target (check! i.e. puppet DVD, books, pirate garb) and win her heart. Again. Possibly with chocolate and a new play kitchen. War really is expensive and good for the economy.

May God have mercy on our souls.

Finally, a set of wheels!

Posted on by amberhj

Stella's new wheelsMy sisters and I had a shiny purple tricycle that became a neighborhood legend. Everybody wanted to ride it. But if Danny, a baseball-obsessed boy who lived a few houses away, ever took it out of our driveway and into the street, I’d become irrationally nervous about the potential for damage or theft. It was totally classic in build yet had a unique violet hue and metallic sheen that gave it some edge. It looked and handled better than my first car, a 1979 Pinto with ironic racing stripes. (Side note: I graduated from high school in 1995.)

While strolling and devouring a Flipside pie this morning, during which time Cody and Stella were off on grand adventures to both Gymboree and the zoo, I spotted a little beauty on the sidewalk outside the consignment store down the street. Made in Germany by Kettler, with a price ($60)  I couldn’t refuse, it seemed very sturdy and well made–destined for Stella’s fast and often furious feet. Cody and I had previously browsed new Kettlers at the toy store around the corner, where they sell for around $200. There is one big advantage of the newer models: as a parent, you can lock the pedals and navigate the stroller yourself (for faster, stroller-like transportation) thanks to a push bar attached to the back of the bike that now comes standard. I could buy a push bar separately (Kettler offers this and many other accessories) and attach it, but the pedals won’t lock, so I’m not sure that would work so well. As a result of this realization, I felt a touch of buyer’s remorse.

But then I remembered our fantastic old-school trike which we managed to navigate ourselves just fine. I never once though, “Gee, I wish I could just sit back and let mom take over. I hate being in control.” So I figure this one should work out just fine for Stella. She loved it immediately and can even use the pedals to a limited degree. Clearly this is another three-wheeled legend in the making!

Proud of my veggie rebel

Posted on by amberhj

One of the many reasons to shop at PCC (Natural Markets), besides tons of carefully selected fresh, local organic produce? Their Kid Fruit Program, described on their website as “Free fruit for kids! Kids ages 12 and under can choose a free serving of a fruit or vegetable to eat while their parents shop. Kids are occupied with eating a delicious snack and parents feel good about establishing healthy eating habits.” Brilliant, I know.

Earlier this week, Stella and I ventured to PCC for what has become a weekly ritual: Slightly-less-angst-ridden-than-before grocery shopping followed by a walk to the “chocolate store” (Theo Chocolate‘s showroom and factory, just down the block and around the corner from PCC in Fremont, where free chocolate samples are abundant and the atmosphere is welcoming) then a walk back to our car along a portion of the Burke Gilman Trail that abuts the canal. After some Hazelnut Crunch and Coconut Curry milk chocolate bites, we wander and wave to friendly boat captains, watch the boats’ wakes ripple out and tumble and splash against the rocks at our feet, and occasionally spot fish taking breaks in the nooks and crannies along the edge. Also, and this is less quaint, I have to physically restrain Stella from launching herself into the water and divert tantrums by pointing to birds.

During this last trip, we meandered through PCC’s produce section as usual, in terribly inefficient fashion because neither my list nor my head are remotely organized. Well, Stella’s mental/verbal tractor beam locked in on the carrots. So I handed one of the massive, bright, slightly dirty spears to her, expecting her to wave it around like a wand or imitate a bunny rabbit as she’s known to do. I figured I’d slice it up and saute it for her later. But no. She proceeded to vigorously munch on that carrot throughout our time in the store (which meant she also sat contentedly in the seat of the shopping cart–unheard of! Thank you, brilliant PCC!), and all the way to the chocolate factory. On our way out, a cashier remarked, referring to the Kid Fruit program, “How cool to see a kid pick a vegetable instead of a fruit!” Stella finished at least half of the entire large carrot, Bugs-Bunny style, and her chin took on an orange hue. I so wish I’d captured that moment on film–my little twenty-three-month-old walking down the street in her chic blue glasses, with tiny pig tails in her hair and a giant carrot in hand.

Mind you, this  is the girl who, after a day of fun at a birthday party a couple of months ago, during which she only ate crackers, cookies, and cake, came home and demanded broccoli. I quickly steamed some and she devoured an entire bowl of the green stuff. This is also the girl who, upon spying a fresh white bag or box from Trophy Cupcakes in the grip of a passerby, recognizes the logo and goes absolutely bonkers, breathlessly demanding “birthday cupcakes!” Her “intake” fluctuates, like most toddlers, but this girl loves to eat.

Stella’s feeding issues are so far behind us, I can barely see them in my proverbial rear-view mirror. But, when I saw her eating that carrot, I was lifted up. I remembered and I realized. We are such a long way from hypoallergenic formula through an NG tube. So close to two years old. Beyond lucky.

Broken glasses, stained clothes, and other infuriating non-issues.

Posted on by amberhj

The other day during breakfast, I asked Stella to name her favorite animal. She sat there for a minute, with her brow furrowed and finger perched on her lips, obviously in deep thought. Stella then perked up and exclaimed, “MEERKATS!” We saw them at The Woodland Park Zoo a couple weeks ago. Honestly, I expected them to look more like rodents, but they were WAY more adorable than that. I remember Stella smiling from ear to ear as she watched the meerkats scurry around in their faux-desert environment. Melted my freezer-burned heart. Anyway, Cody and I were so impressed with her question-answering that we followed up with another query: “Stella, what’s your favorite food?” She immediately replied, “Animals!” Come to think of it, the girl does enjoy bacon and chicken.

It’s amazing to me how someone so cute, small and thoughtful can be so destructive. See, Stella’s first pair of glasses lasted only 18 days. Last night, while riding in the car, she just about tore one of the temples clean off. It’s still attached, but dangling and wonky. Kind of like my sanity, except with that, there’s no warranty.

Know what else is messed up? There are oil stains on every piece of clothing that I own. Pre-treating with dishwashing liquid helps a lot, but it’s hard to get them all out, because oil stains are invisible until you put the garment on to wear for the day. Then they leap from their hiding places, get all up in your face, and yell, “Surprise, chump!” And you’re not thrilled. Upon reflection, the amount of rage these stains have prompted from me is embarrassing. I have thrown tunics across rooms, and yelled angrily about how I have nothing to wear. And I’m 33 years old.

Perhaps my instability is linked to the fact that Stella’s been eating a lot less lately. Yep, when Stella’s appetite wanes to this degree, it still bothers me, even though I know better. When I said my sanity was dangling, I meant it. During the past week, more food has wound up on my clothes than in her mouth. She often refuses to sit in her chair and will only come to the table if she gets to sit in my lap. I’ve had to fight to remain calm–especially when she gets my hopes up by grabbing a fistful of tomato-y, olive-oil laden pasta, only to casually dump it back on her plate and grab me by the front of my shirt for leverage as she repositions herself in order to get down from the table, after eating just about nothing. Maddening. She’s just too busy thinking about meerkats to eat, and who has time for napkins when mom’s new t-shirt is at the ready?

But I’m not all hopeless or anything. Stella’s got a back-up pair of glasses (because I’m a genius). Even better–I haven’t seen Stella’s eyes cross since she got the glasses! Over the past couple weeks, I bought an entire new (summer) wardrobe for Stella and myself. But I’m no fool. At meal times I’m wearing that fun, striped apron I wisely bought a year ago and never used. Which reminds me, Stella happily ate a bit more at breakfast and lunch today–hooray!

Sorry, Cody and Stella. I’ve been a bit down lately. But it looks like we’ll survive. In the heat of a frustrated moment, I forget how good we are at that.

Adjusting

Posted on by amberhj

Our train, still rumbling through New Glassesville, jumped the track a couple days ago. Stella took an impressive spill in one of her signature, glorious full-sprint to flat-out moments. The temples got bent out of whack. I bent them back into approximate place. That marked the beginning of a new wave of resistance. I’d put the glasses on her head, and Stella would immediately and mercilessly tear them off. This went on for about two days. She’d only leave them on while completely distracted–like say, at the playground, on helicopter rides, or watching the fireworks I convinced the city to present nightly over our home. Not really, but the effort to entertain Stella (necessitated by the specs) had been waning when it seemed  she was taking to the glasses. And now I’m kicking things back up a few exhausting notches.

Clearly, it seemed, the glasses needed to be adjusted. But it was Memorial Day weekend, so we couldn’t go in. We had to tough it out, and I almost went insane because they’d be fine at first, and if she left them on for a couple minutes (an act of God) they’d wind up about a half inch off to the right. Finally, Tuesday, wondrous Tuesday, arrived. We went in that morning for the adjustment on her frames.

I found myself showing a distinct lack of trust in the very skilled optician. I just can’t help it. Because didn’t you know? The fate of not only Stella’s eyesight but THE WORLD rests in my hands. Apparently. if I’m not 100% on top of everything, this increasingly oily ball of life we call Earth is going to burst into flames (easier now, with the oil spill and all) and it’s all over.

Seriously. I spent a good five minutes explaining what had happened and what was off about the glasses. As if she didn’t know anything. She did initially ask, “What’s going on?” But I really took that ball and ran with it–just like Forest Gump. I just kept going, across the goal line, out of the stadium and across the nation, only I didn’t make friends along the way and inspire people to pursue greatness, I instilled new worries and pointed out everyone’s flaws.

So, probably because I kept insisting that the glasses were seriously “off” (she didn’t really see it) and not staying in place, she tightened them up a bit. Which created a whole new problem. They looked perfectly straight, but Stella’s refusal to wear the glasses reached new heights.  It got worse and worse and I got more panicky and angry with each passing hour. Then, driving home after running errands (which actually do a decent job of distracting Stella from her glasses), I looked back to see that Stella had removed her troublesome specs. Holding the temples in her white-knuckled fists, with an expression of sheer rage on her face, she stretched the glasses–temples and all–into one straight, flat line. They were no longer glasses. They became a bookmark. I was driving and there was nothing I could do about it except unleash a nervous, faux-calm, sometimes faux-perky, sometimes serious and admonishing, nonsensical string of, “No! Gentle! Glasses! Uh… uh… hey Stella! Look at the truck! No! Stella, gentle! Glasses! Gentle glasses!” Finally I just said, to myself because I never ever swear in front of Stella (usually sort of–I’m really trying!), “Ah screw it,” and she kept those glasses in that horrifying horizontal position until we got home a few minutes later.

Imagine my surprise when, not only did they spring back into place, but they seemed to fit better. She has been wearing them with much more acceptance today. What? Yes. Stella, in a fit of anger, managed to execute a perfect adjustment to her own glasses. And I didn’t even have to fill her in on what the several, nuanced issues were. Now she just needs to get a job at the optician’s office so we can pay for her stylish and amazingly resilient Parisian specs.

What the crap.

Posted on by amberhj

Skyping with Stella's grandparents always cheers us up.

Skyping with grandparents cheers us up.

So, we’re dealing with what shall be known as “The Great Glasses Adjustment of 2010” (also referred to as “Operation Straight Eyes”) when at some point last night, Stella developed a cold, and some jerk broke into my humble tan sedan. Probably at the same time. I somehow left my now stolen iPhone (which I got for $99, refurbished, so don’t get the wrong idea about my spending habits) on the seat after a late-night grocery run to fetch staples for Stella and dinner ingredients for tonight. And I know what you’re thinking, but no. I don’t resent the fact that the fancy Volvo station wagon parked in front of my dented Ford Focus was left untouched.

We quickly replaced the smashed window, the remnants of which Cody spent the morning cleaning up, rather than working out as planned. He cut his hand, but not too bad. Between optical expenses, ER bills, theft, and broken windows, we are hemorrhaging money. I think I just saw a fat-ass fly ride a twenty dollar bill out the window like it was a magic carpet. Because money is just getting more and more creative about how to get the hell out of here.

Stella’s hypoallergenic formula, a.k.a. gastronomical gold dust, wasn’t covered by insurance after she was weaned from the tube, so for about eight months, we spent $1000 on Elecare every thirty days. Our household ran at a deficit–we haven’t had credit card debt for a long time and didn’t accumulate any, but our savings withered. There were also many, many tube-related ER trips and a hospital stay during that time. Over-the-top expensive, but to be honest we didn’t think much about it, because of the urgency of Stella’s healthcare needs back then. Cost didn’t really matter, because we had our savings to fall back on and because we just wanted her to eat, no matter what it took, and before too long, she did! Well, very recently, we’d finally caught up were able to send a chunk of change to our neglected nest egg. Now we’re taking a step backwards, further away from our financial goals. But that’s life. We’ll bounce back. I’ll get some project work. Come hell or high interest rates, we’ll own a home soon, and we’ll appreciate every nail in every floorboard, every drawer that opens and closes smoothly without creating sawdust, every annoying, costly repair that at least reinforces the home we own.

Do you believe in The Secret? I used to be pretty pumped up by it. Now I’m totally embarrassed about that. The Secret, at least in the form this concept took in the movie, creates the illusion of complete control over life and wealth and circumstances. Yes, that ever-elusive sense of control. Which is probably why I loved it so much at first. Not that there’s no truth contained therein. I do think that our attitude and beliefs to shape our world in powerful ways. But it’s not that simple. Some things really are beyond our control. We can’t avoid all disaster or disappointment or difficulty just by looking in the mirror and telling ourselves how wonderful and perfect our lives, bank accounts, and vision are. But we can choose how to respond, and make the best of it. What an old-fashioned idea.

I’ll buy a new phone, move on, and take care not to leave it or anything else of value in the car. Besides, the joke’s on them! Those stupid thieves didn’t realize Stella’s car seat was worth about three times as much as the iPhone. Though, it’s probably not quite as easy to tote around while lurking in an evil fashion along the streets looking for more shit to steal from stressed out, absentminded moms.

Here’s an attempt at a point. Why am I so quick to blame myself for everything? I don’t think that way about other people. Obviously, Stella didn’t do anything to deserve or “attract” a feeding tube or accommodative esotropia. And all those kids starving in Africa, and those hungry here in this wildly unbalanced country of ours? You think their bellies are grumbling because they don’t know The Secret? Right. I bring this up because part of me does wonder how I could’ve brought all this upon us. (Possible answers: My negative attitude. My dissatisfaction with our rented home and distance from family. My impatience.) But there’s another voice that is out of breath from jumping up and down while yelling loud enough to be heard: “It could be a lot worse, you idiot!” See? Even this voice is self-deprecating. It continues, “You are still very lucky! Remember all the things and people that are right and beautiful and decidedly not stolen!”

And hey, you know what? There’s this. Stella did a pretty fantastic job wearing her glasses today. At some point, she sat on the big chair by the window and counted to ten while smiling. And I got a free triple latte from Fuel today–they said the machine was acting up, but I think the barista knew I needed a boost. It’s a start. I’m grateful for that and a whole lot more.