trophy cupcakes

Because we just can’t get enough therapy.

Posted on by amberhj

It’s official. Today, I scheduled Stella for weekly, ongoing vision therapy. I feel victorious! As in, “We’re going to the Super Bowl, baby!” (I probably need to get out more.) You see, our second opinion (the first being Seattle Children’s Hospital, where vision therapy was never mentioned, and the third being our current doctor) told us that Stella was far too young to do vision therapy. (How many times can I say “vision therapy?” Let’s see, shall we?*) Also, as I’ve said a million times lately, I just finished reading Fixing My Gaze, and it got me so pumped up about vision therapy that I felt physically uncomfortable with the knowledge that we weren’t pursuing vision therapy. And not only has Stella been taking off her glasses more, she’s been staring into space and rubbing her eyes frequently, too, as she did before getting glasses. Now I’ll have someone to gauge Stella’s vision regularly, someone I can grill in person and upon whom I can dump all my concerns on a weekly basis. Hooray for vision therapy!

So every Wednesday morning, we’ll be headed out for some mindblowingly fun “eye games” (aka “vision therapy”). That’s my brilliant branding for this new adventure. Wearing an eye patch is currently called, “the eye patch game.” I know, I know. My advertising background is coming through in its full luminescence here, I’m a genius and I put Don Draper to shame. Yes, yes and yes.

Upon confirming our slot, the vision therapy office emailed me a preparatory doc entitled, “VISION THERAPY: What you need to know.” Highlights include:

  • Vision therapy programs are individualized. “Each session consists of 45 minutes of one on one care combined with a program of daily home oriented therapy.”
  • We will be given “vision therapy handouts and supplies for home therapy use that will change periodically.”
  • “The majority of patients in a once a week program are in vision therapy for nine months to one year.”
  • Progress evaluations must be scheduled every three months regardless of the number of vision therapy sessions that have taken place during that time.

I am totally bringing chocolate chips, maybe even a baker’s dozen from Trophy Cupcakes, to each session. Whatever it takes to reward and encourage cooperation! Stella is 24 months old and is going to be asked to “focus” (in one way or another) for 45 minutes straight. I know she can do it. I’ve seen her concentrate intensely on an enormous ice cream cone for at least that long. I know we can make it work and I know this doctor knows what she’s doing and is fully aware that Stella just turned two. I know I know I know. But (shockingly) I’m a little nervous. Kind of like that time I bitched endlessly and fought like hell to get a promotion, then when it was finally handed to me, I freaked out and realized I didn’t know what the hell I was doing. “Idiots! What were they thinking giving me all these new responsibilities! I’m not ready for this! Oh wait…”

But seriously, it’s all coming together. Another bit of encouragement emerged on Monday evening at our PEPS (Program for Early Parent Support) gathering. (PEPS is just a bunch of parents-to-be that get tossed into a group that starts meeting weekly once the babies are born, within a month or so of each other. Basically, for new parents, it’s a way of feeling less insane.) Turns out one of the mothers in our PEPS group had double vision as a child, mainly when tired–fatigue is also what triggers Stella’s eye crossing. She admitted that in an attempt to see clearly, she wound up walking around with one eye closed. Her mother got used to seeing this, and like most young kids she was very good at compensating for the vision problem. As a result, she said her mom pretty much let it go until a friend called her out on it. She was told to wear a patch, but her parents opted for vision therapy instead! My kind of people! She did vision therapy for a year at around age six and that did the proverbial (literal?) trick–it’s just amazing to me. She’s had control of her eyes, and no double vision, since. Her recollection is that the sessions were fun, with engaging activities, but that she felt very tired afterward. And, because apparently she can read minds and intuited my concern about Stella’s age, she mentioned that while she was school age during her vision therapy, kids of all ages could found in the waiting room. (Thank you, PEPS pal.)

This sort of discovery keeps happening! Stella’s glasses and patch have been the gateway to all kinds of stories about patching and eye crossing and visual whatnot from just about everyone we know, and even some we don’t. It’s news to us but apparently everyone has a sibling or close relative who faced the same type of vision issues in childhood. I should’ve known! In Fixing My Gaze, neurobiologist extraordinaire Susan Barry points out that about one in 25 children has strabismus or a binocular vision problem. That’s roughly one in every classroom. It’s become clear that Stella is in good company, and it all feels so normal now. Which blows my mind. Normal and I aren’t close but I’ve always wanted to get to know him. Some say he’s boring but I find him absolutely fascinating!

One other bit of insight I took away from that vision therapy handout: This shit is going to be expensive. Did I mention I’m looking for freelance writing gigs? Go ahead and picture me, out on the internet highway, holding a shabby virtual sign that reads, “WILL WRITE FOR VISION THERAPY.” See? Completely normal.

P.S. Found this at covd.org, a “World Health News Today” segment on vision therapy for children.

* Tally: 19 “vision therapy” mentions. 20 if you count that one. I can totally do better. Vision therapy! 21.

Proud of my veggie rebel

Posted on by amberhj

One of the many reasons to shop at PCC (Natural Markets), besides tons of carefully selected fresh, local organic produce? Their Kid Fruit Program, described on their website as “Free fruit for kids! Kids ages 12 and under can choose a free serving of a fruit or vegetable to eat while their parents shop. Kids are occupied with eating a delicious snack and parents feel good about establishing healthy eating habits.” Brilliant, I know.

Earlier this week, Stella and I ventured to PCC for what has become a weekly ritual: Slightly-less-angst-ridden-than-before grocery shopping followed by a walk to the “chocolate store” (Theo Chocolate‘s showroom and factory, just down the block and around the corner from PCC in Fremont, where free chocolate samples are abundant and the atmosphere is welcoming) then a walk back to our car along a portion of the Burke Gilman Trail that abuts the canal. After some Hazelnut Crunch and Coconut Curry milk chocolate bites, we wander and wave to friendly boat captains, watch the boats’ wakes ripple out and tumble and splash against the rocks at our feet, and occasionally spot fish taking breaks in the nooks and crannies along the edge. Also, and this is less quaint, I have to physically restrain Stella from launching herself into the water and divert tantrums by pointing to birds.

During this last trip, we meandered through PCC’s produce section as usual, in terribly inefficient fashion because neither my list nor my head are remotely organized. Well, Stella’s mental/verbal tractor beam locked in on the carrots. So I handed one of the massive, bright, slightly dirty spears to her, expecting her to wave it around like a wand or imitate a bunny rabbit as she’s known to do. I figured I’d slice it up and saute it for her later. But no. She proceeded to vigorously munch on that carrot throughout our time in the store (which meant she also sat contentedly in the seat of the shopping cart–unheard of! Thank you, brilliant PCC!), and all the way to the chocolate factory. On our way out, a cashier remarked, referring to the Kid Fruit program, “How cool to see a kid pick a vegetable instead of a fruit!” Stella finished at least half of the entire large carrot, Bugs-Bunny style, and her chin took on an orange hue. I so wish I’d captured that moment on film–my little twenty-three-month-old walking down the street in her chic blue glasses, with tiny pig tails in her hair and a giant carrot in hand.

Mind you, this  is the girl who, after a day of fun at a birthday party a couple of months ago, during which she only ate crackers, cookies, and cake, came home and demanded broccoli. I quickly steamed some and she devoured an entire bowl of the green stuff. This is also the girl who, upon spying a fresh white bag or box from Trophy Cupcakes in the grip of a passerby, recognizes the logo and goes absolutely bonkers, breathlessly demanding “birthday cupcakes!” Her “intake” fluctuates, like most toddlers, but this girl loves to eat.

Stella’s feeding issues are so far behind us, I can barely see them in my proverbial rear-view mirror. But, when I saw her eating that carrot, I was lifted up. I remembered and I realized. We are such a long way from hypoallergenic formula through an NG tube. So close to two years old. Beyond lucky.

Stella Enters Single Digits

Posted on by amberhj

Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over.

The birthday girl.

The birthday girl.

Okay, I’ll say that after 12 mind-blowing months, it feels like heaven to see her thriving, running, throwing, walking, laughing, smiling, waving, chowing, bye-bye-ing and doing everything she is “supposed to” and more, especially after all we went through with her feeding issues and the entity referred to as The Tube. Perhaps I appreciate this milestone more–who knows, maybe a lot more–than I otherwise would have. There were days when I didn’t know if she’d grow again. I couldn’t see a way out for us–no light at the end of the tunnel. In fact, it wasn’t a tunnel. It was a deep hole and we were stuck in what seemed like mud but it was too dark to really know. There were nights when terror had me by the throat and I literally had trouble breathing because I loved her so much and that feeding tube was hell and totally unacceptable and the tyrannical, suffocating thought, “WHY WON’T SHE JUST EAT?” robbed me of my own appetite and mental stability (what little I had to begin with). The really sad part, I suppose, is that I know there were stretches of time during which worry over her unwillingness to eat, and knowledge of the pain she was in initially, and the resulting lack of weight gain robbed me of much of the enjoyment of some her early little triumphs–the ones that are actually incredibly huge–and anxiety sometimes prevented me from savoring that fleeting, precious time in her life. That’s what gets to me as I look back.

But now, here we are at one year old. We made it! We kicked some ass. Holy crap. We moved MOUNTAINS, we hit the three-pointer at the buzzer, we saved the world! (Our little corner of it, anyway.) I could not be more proud of her. And you know what? I’m proud of me too. I love where we are now. She is such a happy and active child and so strong and vibrant and resilient. She glows! Everyone sees it. I am tempted to quote Jack Nicholsen here, which seems inappropriate and perfect: “You make me want to be a better man.” Because she has inspired me to let go of what doesn’t matter and to cherish what does. Heck, if she is this awesome (and she really, really is–like when she spots her Cookie Monster doll across the room and lowers her voice several octaves and talks in scruffy baby talk all the way over to him), I must be pretty great. So, to be better, I don’t really have to do much at all, except be kinder and gentler toward myself. That’s the example I want to set for Stella.

Just after proving that guacamole has a calming effect.

Just after proving that guacamole has a calming effect.

We threw a very small, delightful and heartfelt party on Sunday (yes, it’s true, a party can be heartfelt). My parents were visiting from Boston, which made it all the more fun. I think we were all shocked when Stella refused to eat her cupcake. Wouldn’t even touch it. We got her to lick the candle, an attempt to help her enjoy some of the Trophy Cupcake frosting magic, but it must’ve been too sweet for her, because she reacted as if she’d been force-fed a heaping dollop of Vegemite. (I reacted the same way, when, during a soiree I attended amid my study abroad experience in Melbourne, I loaded up a cracker with what I thought was Nutella. Let’s just say that I’ve never been more wrong about anything in my life.) Total disgust. However, she eagerly ate my mom’s super fantastic guacamole, and had some flaky crust from one of the three types of quiche (crab, broccoli, and bacon-loaded Lorraine–all were superb).

She looked as adorable as ever, but, not at all used to wearing a floofy dress, she tried to undress herself constantly. Also not accustomed to so many people (and all were adults save for one toddler) crammed into our small abode, she got a bit clingy. I have to say I enjoyed that, because she’s usually far too busy sprinting around or doing headstands on the coffee table (trying to, anyway) to be held. Oh my, she WAILED when we sang “Happy Birthday.” It was funny, and got a big laugh (which probably didn’t help matters!) but I really felt for her. Actually, I set her up. I know full well that when you sing to her on your own, she’ll not only be mesmerized, but she’ll often sing along, or more likely try to one up you with her angelic singing voice when you’re done. But don’t you DARE sing with anyone else! Not even one other person! It is absolutely *terrifying* to this otherwise fearless girl. Cody and I learned this a few months ago. I was singing some old Cookie Monster song (that Cody taught me) while feeding Stella, when Cody chimed in. She looked at me with an expression of total horror, then looked at Cody, and back at me. And then, the tears and hysterics began. Sometimes we forget about this and absentmindedly join in if the other is singing and holy cow does our self esteem take a hit when she gives us the biggest and most terrified thumbs down you can imagine.

Cody made a bound hardcover photo album recapping Stella’s first year of life, as a surprise for me. It arrived yesterday, and it’s fabulous. I just love it. (Thank you very much, Cody!) Somewhere toward the middle, there’s a photograph from Christmas day. She’s on her tummy, wearing her green candy cane (striped) PJ’s, with her fists restly cutely under her chin. Her expression is priceless. She is clearly thrilled and her grin could not be any wider, but there is an undeniably devilish glint to her smile. She’s up to something. The tube is there with its horrible, all-too-temporary tape job, but at first, I didn’t even see it. All I saw was her beautiful face. And as I realized this, I was struck with how far we’ve come.

Stella, happy, happy birthday! You are a wonder to behold. We feel so lucky, so incredibly thankful to have you in our lives. I love you so much I would stand on my head all day long just to prove it to you, or even eat a whole tub of Vegemite. May your second year be as triumphant as your first, and even more joyful! We can’t wait to see what you do next.