Just a note to say that in this blog's navigation I've replaced the "Stella's Tube Wean" page with a more broad and helpful "Tube Weaning Stories" page. All of these children's stories deserved to be more prominent, darn it! I plan to fill this page with links to dozens and dozens of weaning stories (with… Continue reading New “tube weaning stories” page
A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Remember Zander? Well he's got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I've been lacking, though I've so wanted to muster it! But then I realized that I can't tell… Continue reading Hooray for Heath, his mom, and inspiring tube weaning success!
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
When is the last time a research paper made you cry? Around the time of Stella's wean, and since then, I've come across information that moved me on many levels. I'd like to pass along these sought-after papers to as many parents (of children and babies with feeding aversions and NG tubes or g-tubes) as… Continue reading Behold: Tube weaning research and guidelines
So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that's not a typo--it's one of our nicknames for her) celebrated her nine-month birthday on Sunday. The occasion was marked with a Waterbabies class (with a… Continue reading Nine months
It occurred to me today that feeding Stella is like being on The Wheel of Fortune, a show that I've always loathed. As she's eating, I'm basically thinking, "Big Money! Big Money!" When she's done with the bottle, I look to see how much she's eaten--200 mls or more is the equivalent of landing on… Continue reading Wheel! Of! Feeding!
Back in mid-November, when Stella's NG tube was put into her cute nose and down into her then-hungry and confused tummy, I was understandably freaked out. I wondered if it was the right thing to do. I worried about how it would affect her. So I did the worst possible thing I could do. I… Continue reading Meet Diego
I've jumped back into the freelance writing life in an effort to make a bit of money while I stay home with Stella Bella. This, of course, necessitated the updating of my resume. It got me thinking. Some of my most impressive achievements and abilities will never grace the pages of this supposedly all-important document.… Continue reading My other resume