We were back at the ER at Children’s Hospital last night, our old stomping grounds. It’s a long story that I will tell soon. But all I can right now is “wow.” All the things I thought were so hard lately, all the things I’d been tired and complaining about, my occasional shortage of patience with Stella during a terrible cold, my lingering fear about her eating, my lack of perspective despite Stella’s earlier health challenges… they’re all punching me in the face simultaneously. And I’ve made the mistake of using Vicks tissues on my eyes while crying. Bad move. It feels like my eyes are radioactive–Cody tells me they’re not glowing but I’m pretty sure I just saw some sparkly green stuff shoot out of my pupils. I was a fool. Now I’m just scared.
A head CT scan did rule out some horrifying stuff. Which is great. But serious questions about my sweet Stella’s eyes remain. A nebulous initial diagnosis hangs in the air. Simply put, this is a rare situation. As one doctor put it: “Odd.” As another doctor put it: “I don’t like it.” My mission for now is to get Stella an appointment with the head ophthalmologist at Children’s Hospital. As soon as humanly possible. I find myself sinking back into old habits, from the days of Stella’s feeding aversion, spending any free moment researching, grasping for answers, even though we’ve yet to see the proper specialist.
I feel like such a jerk for not appreciating more how well Stella has been doing. IS doing! This is just one more challenge she’ll overcome. I can’t overstate how incredibly lucky I am to have her. And no matter what the outcome or prognosis or course of treatment: STELLA IS PERFECT JUST THE WAY SHE IS. Always has been.
There’s so much to this story. I look forward to sharing it when I have regained a bit of composure.