Well, hello there! First I want to apologize for not getting back to those of you who have reached out over the past couple of years. I’m feeling ready to re-engage a bit with the blog, and share more of Stella’s progress and our family journey. I hope to hear from you, too.
For now, I wanted to help spread the word about an amazing Oscar-winning documentary short. “Our Curse” was created in Poland by little Leo’s rad parents. I was in awe of how this new mother and father stuck together emotionally through the trials of their child’s life-threatening condition. I also felt the barely-kept-togetherness of the moment where they replace baby Leo’s breathing tube, as in many ways it so closely resembled the many times we replaced Stella’s NG tube. No doubt other parents of children with tubes or vision issues and other challenges will appreciate this work of art and love and honesty. Just in general, the film is raw and beautiful. “Our Curse” is a blessing, as I suspect it will help many families feel a bit less alone, and a touch more hopeful.
The movie (available in full on The New York Times’ website):
The blog (where you can see how Leo is doing):