To Parents in the Storm

I don't write about Stella very much anymore. Not because there's nothing inspiring to share, but for fear of crossing boundaries and exposing a person who is all her own. That said, I know that there are still parents around the world reading this blog because their baby or young child is facing challenges with feeding… Continue reading To Parents in the Storm

Winter is leaving

I will miss her bracing brisk air Sharp crystals and soft mounds of snow A rest from heat and pause in growth Cold quiet that heightens your aliveness And insulates the roots of the trees We have softened ourselves flat In the warmth of convenience Except in plastic decorative odes To ancient seasonality and rhythm… Continue reading Winter is leaving

I am not a poet but

A short, simple poem came to me today. It emerged out of nowhere, after some rainy gardening. It also happened to appear amid ongoing efforts to stay positive despite a barrage of cold news. Stella still faces some challenges but is doing well. She just started second grade (said her first day was "awesome!") and achieved 10/10 in 3D vision testing for… Continue reading I am not a poet but

Something Amazing Happened at Disneyland.

(Note: This is not a sponsored post. I don't get near enough traffic to attract Disney's attention.) In May, after our first three months of OT and PT with Stella, we splurged on a trip to Disneyland. We'd been worrying and agonizing about new realizations and a new path for Stella. We'd been working hard,… Continue reading Something Amazing Happened at Disneyland.

Dark circles and bright spots

I'm growing ever more concerned about Cody and myself. On Wednesday morning  I had a crying meltdown after driving way up north for an appointment for Stella, which I thought had been squeezed in before preschool that day but was actually squeezed in before OT yesterday. I completely forgot about her 25-minutes-away PT appointment on… Continue reading Dark circles and bright spots

Onward

After weeks of evaluations, we are now in the thick of OT and PT appointments and daily OT and PT work at home, and sensory activities, on top of three types of patching to help fight the double vision Stella experiences. More VT (vision therapy) will come after we finish laying the foundation with OT… Continue reading Onward