Category Archives: Frustration Station

An inevitable dip in the roller-coaster ride

When Stella gets really upset about anything at all, her immediate, go-to move is to tear off her adorable purple glasses with one hand (OUCH!) and throw them, with the force of every ounce of rage she’s got. Though to … Continue reading

Posted in Frustration Station, Lessons in parenting, Stella's eyes, The Patch, toddler, vision therapy | Tagged , , , , , , | 7 Comments

All I want for Christmas is an earlier bedtime

Night before last I slept like a baby. A newborn, actually. I was up until midnight, and wide-eyed from about 1:30 to 6 a.m. At which point I drifted into peaceful slumber for 90 minutes. I went to bed late … Continue reading

Posted in Frustration Station, sleep, toddler | Tagged , , , | 4 Comments

Insert screaming noise here.

WHAT THE HELL IS WRONG WITH YOU GUYS? (I’m talking to my brain cells here–not you, dear readers!) Ahem. I mean, hey you smart little guys up in my head. I’m concerned about you! Are you feeling okay? Gosh, I … Continue reading

Posted in Frustration Station, motherhood | Tagged , , | 1 Comment

Our vision therapy experience so far… on littlefoureyes.com

Just a note to say that if you are interested in how our first two weeks of vision therapy have gone, you can get the details over at littlefoureyes.com. I just wrote a post about how we wound up doing … Continue reading

Posted in Frustration Station, Stella's eyes, The Patch, toddler, vision therapy | Tagged , , , , , | Leave a comment

Random Observations, because I’m trying to post more often

Once in a while, Stella calls me “Amber.” Deeply disturbing yet hilarious. Though, it totally sounds like she’s imitating Cody. She’ll be in the computer room yelling, “Amber! Amberrrr! I can’t HEAR you! AMBER!?” Yep, sounds familiar. We finally programmed … Continue reading

Posted in Family update, Frustration Station, Lessons in parenting, motherhood, Stella's eyes | Tagged , , , , , | 6 Comments

This isn’t healthy.

I should’ve been asleep an hour ago. Instead of taking care of myself, I spent a bunch of this Friday evening, when Cody and I are supposed to be relaxing and celebrating our wedding anniversary, scouring photos of Stella from … Continue reading

Posted in Frustration Station, Hospital stay, motherhood, Stella's eyes, The Patch, vision therapy | Tagged , , , , , , , | 6 Comments

Rough patch

This is a rather tedious post. But I can’t help it. Understanding Stella’s visual issues involves a level detail that hurts my head. I have to give each individual brain cell a pep talk before attempting to absorb anything. Tomorrow, … Continue reading

Posted in Frustration Station, Stella's eyes, toddler, vision therapy | Tagged , , , , , , , , | 6 Comments

If you have a daughter, you’ll understand

Scares the living crap out of me: Fashion bras for four-year-olds. With defined cups. And no straps. (Video from Jessica Gottlieb.) Gives me such hope: Chelsea Baker, a 13-year old Little League 65-mph pitcher. With a freaking knuckle ball. And … Continue reading

Posted in Frustration Station, Inspiration | Tagged , , , , , | 1 Comment

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Back into battle! I think I’ll call it “Operation Shark Patch.”

I’m not even going to pretend to be positive right now. I’ll get there. But not yet. Because I’ve just been asked to do the equivalent of putting mascara on a shark. For hours each day. Yesterday we found out … Continue reading

Posted in Appointments, Family update, Frustration Station, Stella's eyes, The Patch | Tagged , , , , , , | 9 Comments