"Anisometropia" sounds like a mythical city built out of licorice, but it's actually a vision condition that Stella has dealt with all her life in which the eyes' refractive powers differ. On Friday, however, we picked up her new eyeglasses in which the prescription is the same in both lenses. This is the first time… Continue reading The value of seeing differently
I don't write about Stella very much anymore. Not because there's nothing inspiring to share, but for fear of crossing boundaries and exposing a person who is all her own. That said, I know that there are still parents around the world reading this blog because their baby or young child is facing challenges with feeding… Continue reading To Parents in the Storm
A short, simple poem came to me today. It emerged out of nowhere, after some rainy gardening. It also happened to appear amid ongoing efforts to stay positive despite a barrage of cold news. Stella still faces some challenges but is doing well. She just started second grade (said her first day was "awesome!") and achieved 10/10 in 3D vision testing for… Continue reading I am not a poet but
(Note: This is not a sponsored post. I don't get near enough traffic to attract Disney's attention.) In May, after our first three months of OT and PT with Stella, we splurged on a trip to Disneyland. We'd been worrying and agonizing about new realizations and a new path for Stella. We'd been working hard,… Continue reading Something Amazing Happened at Disneyland.
My child is strong and healthy. That said, at just four years of age, she has already taken part in occupational therapy (OT), vision therapy (VT), cranial sacral therapy, and yoga therapy (also called Integrated Movement Therapy or IMT). Her vision conditions, and early feeding aversion, have presented us with atypical challenges. Yet there is… Continue reading On my parenting journey, and “Far from the Tree.”
Hello, blog. How are you? What? Those bags under my eyes? No, ten years haven't passed. I'm just really tired. Mom tired. Recently-nighttime-potty-trained tired. You get the picture. Not a picture of me until my next haircut, though. I need bangs to distract from the bags. So, Stella wears bifocals now. I think they are… Continue reading Look what the cat granddaughter dragged in!
Well, on Friday morning, Stella and I made our way to Seattle Children's ophthalmology department for her yearly exam. The high-level stats for those keeping score and not wanting to sift through a lengthy post: Clear improvement of stereoscopy, virtually unchanged acuity (still one line different at 20/30 and 20/40, though one examiner saw equal… Continue reading Judgement Day for Stella’s Vision, Part 1: Ophthalmology’s View
A few weeks ago, I noticed a distinct change in Stella's vision. Bam! It could not have been more obvious if she slapped me across the face and said, "Damn it, mommy woman! My vision is changing! Give me a god damned hug!" In short, her peripheral vision opened up in dramatic fashion. Last year,… Continue reading The Great Peripheral Awakening of 2011
Stella's Easter basket included a sweet set of watercolors and accompanying pad of paper. She's used them every day so far, at her request, and as it so engages her, I've been putting the goggles on her while she paints. We're starting to branch out, no longer limited to the brush that was included with… Continue reading Artist, and goggles, at work
Stella's toes are starting to relax. The yoked prism goggles continue to benefit her, but it's created a small, surprising side effect. Turns out, her toes have been clenched so consistently for so long that the skin is actually having to stretch out as her toes extend outward. There are now raw, sometimes bloody cracks… Continue reading Quick VT note: TLC for Stella’s transitioning toes.