Something Amazing Happened at Disneyland.

(Note: This is not a sponsored post. I don't get near enough traffic to attract Disney's attention.) In May, after our first three months of OT and PT with Stella, we splurged on a trip to Disneyland. We'd been worrying and agonizing about new realizations and a new path for Stella. We'd been working hard,… Continue reading Something Amazing Happened at Disneyland.

Spring

I know that our efforts in OT and PT have really just begun, but I swear I already see little buds that will one day burst into blossoms. Slowly, steadily, surely. I see her ever-so-smoothly writing letters on the chalkboard wall with a nice grip. She is sounding out the silly non-words she lays out… Continue reading Spring

Onward

After weeks of evaluations, we are now in the thick of OT and PT appointments and daily OT and PT work at home, and sensory activities, on top of three types of patching to help fight the double vision Stella experiences. More VT (vision therapy) will come after we finish laying the foundation with OT… Continue reading Onward

Judgement Day for Stella’s Vision, Part 1: Ophthalmology’s View

Well, on Friday morning, Stella and I made our way to Seattle Children's ophthalmology department for her yearly exam. The high-level stats for those keeping score and not wanting to sift through a lengthy post: Clear improvement of stereoscopy, virtually unchanged acuity (still one line different at 20/30 and 20/40, though one examiner saw equal… Continue reading Judgement Day for Stella’s Vision, Part 1: Ophthalmology’s View

The Great Peripheral Awakening of 2011

A few weeks ago,  I noticed a distinct change in Stella's vision. Bam! It could not have been more obvious if she slapped me across the face and said, "Damn it, mommy woman! My vision is changing! Give me a god damned hug!" In short, her peripheral vision opened up in dramatic fashion. Last year,… Continue reading The Great Peripheral Awakening of 2011

Artist, and goggles, at work

Stella's Easter basket included a sweet set of watercolors and accompanying pad of paper. She's used them every day so far, at her request, and as it so engages her, I've been putting the goggles on her while she paints. We're starting to branch out, no longer limited to the brush that was included with… Continue reading Artist, and goggles, at work

Quick VT note: TLC for Stella’s transitioning toes.

Stella's toes are starting to relax. The yoked prism goggles continue to benefit her, but it's created a small, surprising side effect. Turns out, her toes have been clenched so consistently for so long that the skin is actually having to stretch out as her toes extend outward. There are now raw, sometimes bloody cracks… Continue reading Quick VT note: TLC for Stella’s transitioning toes.

Re-entering the ring: Stella the Spella!

Just a few small updates for now. Stella can spell her name and delights in doing so. I'm extremely proud of her, as you can imagine. I suspect she'll start spelling other words soon. She's making a habit of quickly rattling off the letters in the words she sees. I have to say that it's… Continue reading Re-entering the ring: Stella the Spella!

Sucker punched!

Well, today's vision therapy could not have gone much worse. She refused to wear the prism goggles for more than a minute or two at at time. Not only did she kick, throw and scream, she attempted to toss all the folders and paperwork off of Bethanie's desk with several angry sweeps of her little… Continue reading Sucker punched!

How vision therapy is saving Stella’s toes, and then some.

Stella is a toe-walker. She's been tiptoeing around for as long as I can remember. Prancing, really. Her gait has been so bouncy and adorable, so evocative of a little ballerina, that her physical effervescence has charmed even sour onlookers. I've been kindling a small flame of worry about her overworked and constantly clenched toes, despite an… Continue reading How vision therapy is saving Stella’s toes, and then some.