I'd like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to help send more supporters her way. She and her mother deserve the biggest and most… Continue reading Meet the brave and amazing Ava.
A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I'd like to introduce you to Francesca and her devoted parents. Their extremely touching and wonderfully written blog, Frankly Frankie, documents Francesca's struggles with eating. They need our morale support--right now. Adorable two-year-old Francesca,… Continue reading Meet fearless Frankie and her parents
I haven't posted in so long because I'm lazy. But also, I needed to take a break and discover a new direction. So, this blog will probably change, and soon. But all the helpful resources pertaining to feeding issues will remain, and I hope that they continue to help and comfort people. The thing is,… Continue reading Steps in a new direction
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that's not a typo--it's one of our nicknames for her) celebrated her nine-month birthday on Sunday. The occasion was marked with a Waterbabies class (with a… Continue reading Nine months
Back in mid-November, when Stella's NG tube was put into her cute nose and down into her then-hungry and confused tummy, I was understandably freaked out. I wondered if it was the right thing to do. I worried about how it would affect her. So I did the worst possible thing I could do. I… Continue reading Meet Diego
I've jumped back into the freelance writing life in an effort to make a bit of money while I stay home with Stella Bella. This, of course, necessitated the updating of my resume. It got me thinking. Some of my most impressive achievements and abilities will never grace the pages of this supposedly all-important document.… Continue reading My other resume
Stella has been weighed dozens and dozens and dozens of times during her six months here on earth. More times than the average Orange County housewife--nevermind the average baby. Many more times than a parent can reasonably expect to endure while maintaining his or her sanity. For close to three months, we went to the… Continue reading At six months, a weight is lifted.