Tag Archives: graz model

New “tube weaning stories” page

Just a note to say that in this blog’s navigation I’ve replaced the “Stella’s Tube Wean” page with a more broad and helpful “Tube Weaning Stories” page. All of these children’s stories deserved to be more prominent, darn it! I … Continue reading

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Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading

Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

Three cheers for Zander! Oh yeah, AND HIS MOM.

Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading

Posted in Inspiration, The tube, Tube weaning | Tagged , , , , , , , , , , | 8 Comments

Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading

Posted in Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 2 Comments

Behold: Tube weaning research and guidelines

When is the last time a research paper made you cry? Around the time of Stella’s wean, and since then, I’ve come across information that moved me on many levels. I’d like to pass along these sought-after papers to as … Continue reading

Posted in Inspiration, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 33 Comments

Please no.

Stella has been getting more and more difficult around eating again and I am starting to freak out about it. She is starting to refuse the bottle more and more. She doesn’t want to eat upon waking up after sleeping … Continue reading

Posted in Cranial osteopathy, occupational therapy, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 1 Comment

A freakout. A rant. And endless gratitude.

Early this afternoon, Stella got upset and took only 100 mls from the bottle. It was really weird. All my fears and worries came rushing back. Granted, she took around 180 before and after that. But what a scare. I … Continue reading

Posted in Appointments, Inspiration, Lessons in parenting, occupational therapy, Tube weaning, Weight check | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

A “grand” day

Today, Stella enjoyed 1000 mls from the bottle. It’s our family’s equivalent of breaking the sound barrier, or walking on the moon. It’s historic and worthy of endless news coverage. I just fed her. It’s such a lovely, peaceful, fulfilling, … Continue reading

Posted in Bottle feeding progress, Lessons in parenting, Milestones | Tagged , , , , , , , , , , , , , , , | 1 Comment

Days 22 through 25: Stella got her groove back

As Stella’s occupational therapist put it, “Stella has internalized the joy of eating.” Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if she goes for a long stretch without … Continue reading

Posted in Bottle feeding progress, Inspiration, occupational therapy, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments