Tag Archives: seattle children’s hospital

This isn’t healthy.

I should’ve been asleep an hour ago. Instead of taking care of myself, I spent a bunch of this Friday evening, when Cody and I are supposed to be relaxing and celebrating our wedding anniversary, scouring photos of Stella from … Continue reading

Posted in Frustration Station, Hospital stay, motherhood, Stella's eyes, The Patch, vision therapy | Tagged , , , , , , , | 6 Comments

Because we just can’t get enough therapy.

It’s official. Today, I scheduled Stella for weekly, ongoing vision therapy. I feel victorious! As in, “We’re going to the Super Bowl, baby!” (I probably need to get out more.) You see, our second opinion (the first being Seattle Children’s … Continue reading

Posted in Appointments, Stella's eyes, The Patch, vision therapy | Tagged , , , , , , , , , , , , , | 4 Comments

Free webinar by Susan Barry: How the system lets down children with vision problems

Here we go again. Like tube feeding, vision is an area in which children aren’t getting the care and solutions they need and deserve. Stella just started patching, because her brain was starting to favor her right (strong) eye. And it’s already become … Continue reading

Posted in Research and resources, Stella's eyes, The Patch, toddler | Tagged , , , , , , , , , , , | 1 Comment

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

No acute abnormalities.

This is part of a new segment I’m calling “Eye on Stella: Strabismus Watch 2010.” Sorry. I just thought that was kind of funny. And I’m running with any humor I can find these days. The ER, whose job it … Continue reading

Posted in Family update, Frustration Station, Hospital stay, motherhood, Stella's eyes, toddler | Tagged , , , , , , , , | 4 Comments

Three cheers for Zander! Oh yeah, AND HIS MOM.

Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading

Posted in Inspiration, The tube, Tube weaning | Tagged , , , , , , , , , , | 8 Comments

Return trip

It’s not an emergency. Nothing is really “wrong.” But we’re about to head back to our old stomping ground: Seattle Children’s Hospital. We’re going there to see Robin, Stella’s occupational therapist. Stella isn’t warming up to solids the way all … Continue reading

Posted in Appointments | Tagged , , , , , , , | 2 Comments

At six months, a weight is lifted.

Stella has been weighed dozens and dozens and dozens of times during her six months here on earth. More times than the average Orange County housewife–nevermind the average baby. Many more times than a parent can reasonably expect to endure … Continue reading

Posted in Appointments, Milestones, Weight check | Tagged , , , , , , , , , , , | 2 Comments

A freakout. A rant. And endless gratitude.

Early this afternoon, Stella got upset and took only 100 mls from the bottle. It was really weird. All my fears and worries came rushing back. Granted, she took around 180 before and after that. But what a scare. I … Continue reading

Posted in Appointments, Inspiration, Lessons in parenting, occupational therapy, Tube weaning, Weight check | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Days 22 through 25: Stella got her groove back

As Stella’s occupational therapist put it, “Stella has internalized the joy of eating.” Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if she goes for a long stretch without … Continue reading

Posted in Bottle feeding progress, Inspiration, occupational therapy, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments