Tube-free Stella: Day 1

Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a little bit of weight. I am on strict instructions to NOT WORRY about how much she eats or when. To NOT PANIC if she… Continue reading Tube-free Stella: Day 1

The road to a tube-free Stella.

At long last, we see GI! Yesterday, after waiting for weeks, we met with Gastroenterology (GI) at Seattle Children's Hospital. They adjusted and increased Stella's meds, since reflux still seems to be causing some pain and preventing her from eating more. We will also meet regularly with a GI nutritionist who can help us figure… Continue reading The road to a tube-free Stella.