My child is strong and healthy. That said, at just four years of age, she has already taken part in occupational therapy (OT), vision therapy (VT), cranial sacral therapy, and yoga therapy (also called Integrated Movement Therapy or IMT). Her vision conditions, and early feeding aversion, have presented us with atypical challenges. Yet there is… Continue reading On my parenting journey, and “Far from the Tree.”
I'd like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to help send more supporters her way. She and her mother deserve the biggest and most… Continue reading Meet the brave and amazing Ava.
Just a note to say that in this blog's navigation I've replaced the "Stella's Tube Wean" page with a more broad and helpful "Tube Weaning Stories" page. All of these children's stories deserved to be more prominent, darn it! I plan to fill this page with links to dozens and dozens of weaning stories (with… Continue reading New “tube weaning stories” page
A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Update: In March of 2010, her parents announced that Frankie discovered the joy of eating and left tube-feeding behind for good! I'd like to introduce you to Francesca and her devoted parents. Their extremely touching and wonderfully written blog, Frankly Frankie, documents Francesca's struggles with eating. They need our morale support--right now. Adorable two-year-old Francesca,… Continue reading Meet fearless Frankie and her parents
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is "HOLY SHITBALLS!" Over and over and over. Okay, I'll say that after 12 mind-blowing months, it feels like heaven to see her thriving, running, throwing, walking, laughing, smiling, waving, chowing, bye-bye-ing… Continue reading Stella Enters Single Digits
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other's parenting styles and choices--battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that's just the tip of the judgemental iceberg. This sad reality is partly why, even though it was necessary to ensure… Continue reading The truth about moms
A couple of weeks ago, I threw out 341 ounces of frozen breastmilk. That was just the bottom shelf. I still need to clear out the top one. It has been six months since the last of it was pumped, rendering my precious milk expired. At the beginning, every half ounce was sacred. Toward the… Continue reading Goodnight, milk.