Days 22 through 25: Stella got her groove back

As Stella's occupational therapist put it, "Stella has internalized the joy of eating." Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if she goes for a long stretch without eating. We still watch her eating behavior like mama and papa hawks, and breathe a… Continue reading Days 22 through 25: Stella got her groove back

Tube-free Stella: Days 4 and 5

Stella's appointment with her pediatrician went well yesterday. She weighed in at 14 pounds, 13 ounces. He said that she looks good and will see her in a week. He is optimistic and doesn't even think she will lose any weight. Still, I confess that I have been worried. Stella has eaten "only" about 5… Continue reading Tube-free Stella: Days 4 and 5

Tube-free Stella: Day 3

Stella is aptly named. Today we received an effusive outpouring of support. From a stranger with whom we'd never spoken but who'd seen Stella with the tube and couldn't stop gushing about how happy she was to see her without it. From two shop clerks whose eyes brightened at the sight of her tube-free face.… Continue reading Tube-free Stella: Day 3

Tube-free Stella: Day 2

Can't sleep so I thought I'd write a quick update. Weaning seems to be going well. Stella is happy and eating pretty often. As is expected over the course of her complete transition from the tube to the bottle, her volume will increase over time. I am struggling to let go of my obsession with counting every milliliter… Continue reading Tube-free Stella: Day 2

Tube-free Stella: Day 1

Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a little bit of weight. I am on strict instructions to NOT WORRY about how much she eats or when. To NOT PANIC if she… Continue reading Tube-free Stella: Day 1

The stubborn determination of hope

Good news. Stella is back to taking in about half of her daily calories from the bottle, just as she did before the recent regression. However. My feeling is that the tube is preventing her from recovering completely. I believe that it exacerbates her reflux and makes swallowing more difficult. I found and paid for two medical… Continue reading The stubborn determination of hope

How will we play this hand?

In between feedings and worrying about feedings, I was flipping around the airwaves when I briefly paused on a news show. I caught the end of a remembrance montage that honored some of the incredible people we lost in 2008. Randy Pausch was one of them. If you haven't seen his famous "Last Lecture," I… Continue reading How will we play this hand?