Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues."  There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children

Well nourished

Sometimes I worry (shocking, I know) that Stella and I don't venture out often enough for grand adventures. You know, to the Woodland Park Zoo or Pike Place Market. But then I turn on the vacuum or open the refrigerator door, and she goes absolutely bonkers with joy and excitement, and suddenly I'm certain in… Continue reading Well nourished

Return trip

It's not an emergency. Nothing is really "wrong." But we're about to head back to our old stomping ground: Seattle Children's Hospital. We're going there to see Robin, Stella's occupational therapist. Stella isn't warming up to solids the way all the charts and books say she "should" by now, at the ripe old age of… Continue reading Return trip

Behold: Tube weaning research and guidelines

When is the last time a research paper made you cry? Around the time of Stella's wean, and since then, I've come across information that moved me on many levels. I'd like to pass along these sought-after papers to as many parents (of children and babies with feeding aversions and NG tubes or g-tubes) as… Continue reading Behold: Tube weaning research and guidelines

Nine months

So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that's not a typo--it's one of our nicknames for her) celebrated her nine-month birthday on Sunday. The occasion was marked with a Waterbabies class (with a… Continue reading Nine months

Wrong again. Then right.

There have been so many times during our seven months with Stella when we thought we had everything figured out, only to discover that we were completely wrong. Back when she was refusing to eat and not gaining much weight, before her two months with the tube, we were, at one point, convinced that the… Continue reading Wrong again. Then right.

Wheel! Of! Feeding!

It occurred to me today that feeding Stella is like being on The Wheel of Fortune, a show that I've always loathed. As she's eating, I'm basically thinking, "Big Money! Big Money!" When she's done with the bottle, I look to see how much she's eaten--200 mls or more is the equivalent of landing on… Continue reading Wheel! Of! Feeding!

Lucky seven. (Months, that is.)

On St. Patrick's Day, Stella turned seven months old. I'm pretty sure that means she can get a driver's permit. And maybe even a part-time job. At the very least, she can sit up for long periods of time before the weight of her large head pulls her over. She can tickle the ivories like… Continue reading Lucky seven. (Months, that is.)

Meet Diego

Back in mid-November, when Stella's NG tube was put into her cute nose and down into her then-hungry and confused tummy, I was understandably freaked out. I wondered if it was the right thing to do. I worried about how it would affect her. So I did the worst possible thing I could do. I… Continue reading Meet Diego

A taste of spring, a touch of sleep deprivation

Spring sprang for a few hours today. And it was lovely. Stella and I went for a sun-drenched walk, and later, we sat outside on the quilt Mimi made. (If only Stella would put down her Blackberry and live in the moment once in a while!) This evening, it rained cats, dogs, and ponies. It… Continue reading A taste of spring, a touch of sleep deprivation