More on the risks of NG tubes

A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he's got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I've been lacking, though I've so wanted to muster it! But then I realized that I can't tell… Continue reading Hooray for Heath, his mom, and inspiring tube weaning success!

Open wide

So, as I reported earlier, we visited Seattle Children's Hospital this week to see Robin, Stella's wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with solids. We were worried because she wasn't eating as much as a nine-month-old is "supposed to" by now. She had not… Continue reading Open wide

Lucky seven. (Months, that is.)

On St. Patrick's Day, Stella turned seven months old. I'm pretty sure that means she can get a driver's permit. And maybe even a part-time job. At the very least, she can sit up for long periods of time before the weight of her large head pulls her over. She can tickle the ivories like… Continue reading Lucky seven. (Months, that is.)

Please no.

Stella has been getting more and more difficult around eating again and I am starting to freak out about it. She is starting to refuse the bottle more and more. She doesn't want to eat upon waking up after sleeping for 10 to 11 hours. We now wait an hour after she wakes up, and… Continue reading Please no.

A freakout. A rant. And endless gratitude.

Early this afternoon, Stella got upset and took only 100 mls from the bottle. It was really weird. All my fears and worries came rushing back. Granted, she took around 180 before and after that. But what a scare. I was so upset, I yelled at Cody like a maniac. He was holding her because… Continue reading A freakout. A rant. And endless gratitude.

Days 22 through 25: Stella got her groove back

As Stella's occupational therapist put it, "Stella has internalized the joy of eating." Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if she goes for a long stretch without eating. We still watch her eating behavior like mama and papa hawks, and breathe a… Continue reading Days 22 through 25: Stella got her groove back

Tube-free Stella: Day 2

Can't sleep so I thought I'd write a quick update. Weaning seems to be going well. Stella is happy and eating pretty often. As is expected over the course of her complete transition from the tube to the bottle, her volume will increase over time. I am struggling to let go of my obsession with counting every milliliter… Continue reading Tube-free Stella: Day 2

Tube-free Stella: Day 1

Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a little bit of weight. I am on strict instructions to NOT WORRY about how much she eats or when. To NOT PANIC if she… Continue reading Tube-free Stella: Day 1