Category Archives: occupational therapy

More on the risks of NG tubes

A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading

Posted in NG tube, occupational therapy, The tube, Tube weaning | Tagged , , , , , , , | 12 Comments

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading

Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

Open wide

So, as I reported earlier, we visited Seattle Children’s Hospital this week to see Robin, Stella’s wonderful and very wise occupational therapist. We wanted to check in and see how Stella is doing with solids. We were worried because she … Continue reading

Posted in Appointments, Bottle feeding progress, Lessons in parenting, Life with a baby, occupational therapy | Tagged , , , , , , , , , , | 3 Comments

Lucky seven. (Months, that is.)

On St. Patrick’s Day, Stella turned seven months old. I’m pretty sure that means she can get a driver’s permit. And maybe even a part-time job. At the very least, she can sit up for long periods of time before … Continue reading

Posted in Appointments, Milestones, occupational therapy, Weight check | Tagged , , , , , , , , , , , | Leave a comment

Please no.

Stella has been getting more and more difficult around eating again and I am starting to freak out about it. She is starting to refuse the bottle more and more. She doesn’t want to eat upon waking up after sleeping … Continue reading

Posted in Cranial osteopathy, occupational therapy, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 1 Comment

A freakout. A rant. And endless gratitude.

Early this afternoon, Stella got upset and took only 100 mls from the bottle. It was really weird. All my fears and worries came rushing back. Granted, she took around 180 before and after that. But what a scare. I … Continue reading

Posted in Appointments, Inspiration, Lessons in parenting, occupational therapy, Tube weaning, Weight check | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Days 22 through 25: Stella got her groove back

As Stella’s occupational therapist put it, “Stella has internalized the joy of eating.” Her feeding aversion is, well, history. A memory. Though not a distant memory, of course. We still get nervous if she goes for a long stretch without … Continue reading

Posted in Bottle feeding progress, Inspiration, occupational therapy, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , , , | 4 Comments

Tube-free Stella: Day 2

Can’t sleep so I thought I’d write a quick update. Weaning seems to be going well. Stella is happy and eating pretty often. As is expected over the course of her complete transition from the tube to the bottle, her volume … Continue reading

Posted in Appointments, Bottle feeding progress, occupational therapy, The tube, Tube weaning | Tagged , , , , , , , , , , | 3 Comments

Tube-free Stella: Day 1

Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a little bit of weight. I am on strict instructions … Continue reading

Posted in Appointments, Bottle feeding progress, Inspiration, Milestones, occupational therapy, The tube | Tagged , , , , , , , , , | 1 Comment