Category Archives: The tube

Knowing when to worry, and when not to

When I was an infant, I had to wear booties attached by a bar. The goal was to straighten out my legs. It worked, but my legs are a bit S-shaped to this day. They curve oddly at the knee, … Continue reading

Posted in motherhood, Stella's eyes, The Patch, The tube | Tagged , , , , , | 2 Comments

Meet the brave and amazing Ava.

I’d like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to … Continue reading

Posted in Inspiration, motherhood, The tube | Tagged , , , , , , , | 2 Comments

More on the risks of NG tubes

A couple of things to share for now: A message I sent in an effort to get support for Stella’s wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid … Continue reading

Posted in NG tube, occupational therapy, The tube, Tube weaning | Tagged , , , , , , , | 12 Comments

Taking a stand against tube-feeding crimes and negligence

Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health “care” system. If you don’t believe me, read on. Or at the very least, get a glimpse of … Continue reading

Posted in Frustration Station, NG tube, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , , | 33 Comments

Hooray for Heath, his mom, and inspiring tube weaning success!

Remember Zander? Well he’s got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I’ve been lacking, … Continue reading

Posted in Inspiration, occupational therapy, Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , , | 1 Comment

Three cheers for Zander! Oh yeah, AND HIS MOM.

Today isn’t just another Tuesday. It’s a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can’t tell you how huge this … Continue reading

Posted in Inspiration, The tube, Tube weaning | Tagged , , , , , , , , , , | 8 Comments

Three is a magic number

Today is our 3rd anniversary. Cody and I have been married for three years, but together for seven and a half. Though, the last year alone feels more like a decade in some ways. Cody gave me the most thoughtful … Continue reading

Posted in Family update, Life with a baby, The tube | Tagged , , , , , , | 7 Comments

Stella Enters Single Digits

Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is “HOLY SHITBALLS!” Over and over and over. Okay, I’ll say that after 12 mind-blowing months, it … Continue reading

Posted in Family update, Lessons in parenting, Life with a baby, Milestones, motherhood, NG tube, The tube | Tagged , , , , , , , , , , , , | 4 Comments

Support and community for parents of tube-fed children

Trying to wean your child off of a tube? Bravo! You’ll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It’s a social network powered by Ning Grouply, with the purpose of “Connecting … Continue reading

Posted in Research and resources, The tube, Tube weaning | Tagged , , , , , , , , , , , , , , , , | 2 Comments

The truth about moms

On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other’s parenting styles and choices–battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that’s just the tip of the … Continue reading

Posted in Lessons in parenting, Life with a baby, motherhood, The tube | Tagged , , , , , , , , , , , | 6 Comments