When I was an infant, I had to wear booties attached by a bar. The goal was to straighten out my legs. It worked, but my legs are a bit S-shaped to this day. They curve oddly at the knee, a quirk noticed by various coaches in middle and high school. But you know what?… Continue reading Knowing when to worry, and when not to
I'd like to introduce you to Ava. For Ava and her family, tube feeding is a precious gift. I wanted to share her story with you all to show the other, positive side of tube feeding, and to try to help send more supporters her way. She and her mother deserve the biggest and most… Continue reading Meet the brave and amazing Ava.
A couple of things to share for now: A message I sent in an effort to get support for Stella's wean, and an AAP study. Below is the actual text of an email, including excerpts from research that I paid for, that I sent to Stella's pediatrician and OT on January 4, 2009. The next… Continue reading More on the risks of NG tubes
Someone needs to say it: tube-fed children and their families are being neglected and often outright abused by a dehumanizing, misguided health "care" system. If you don't believe me, read on. Or at the very least, get a glimpse of a far superior alternative by viewing this tube weaning lecture delivered at Seattle Children's Hospital… Continue reading Taking a stand against tube-feeding crimes and negligence
Remember Zander? Well he's got company. (The tube-free ranks are growing.) Sadly, I kept putting off this post because the hugeness of the triumph deserves a truly well written, heartfelt description. Which takes time and energy that I've been lacking, though I've so wanted to muster it! But then I realized that I can't tell… Continue reading Hooray for Heath, his mom, and inspiring tube weaning success!
Today isn't just another Tuesday. It's a very important day. Today, February 9, 2010, is the day Alexander (Zander or Zandy to those who love him) left his G tube behind. For good! I can't tell you how huge this is. Due to one of the most severe cases of frank aspiration ever seen at… Continue reading Three cheers for Zander! Oh yeah, AND HIS MOM.
Today is our 3rd anniversary. Cody and I have been married for three years, but together for seven and a half. Though, the last year alone feels more like a decade in some ways. Cody gave me the most thoughtful card with several sentences written inside that made my eyes well up (!), and, from… Continue reading Three is a magic number
Stella turned one on Monday. I should probably say something really profound and eloquent and heartfelt but all I keep thinking to myself is "HOLY SHITBALLS!" Over and over and over. Okay, I'll say that after 12 mind-blowing months, it feels like heaven to see her thriving, running, throwing, walking, laughing, smiling, waving, chowing, bye-bye-ing… Continue reading Stella Enters Single Digits
Trying to wean your child off of a tube? Bravo! You'll find comfort, resources, and encouragement in this online support group: Tube Fed Children Deserve to Eat It's a social network powered by Ning Grouply, with the purpose of "Connecting Parents of Children with Tube Feeding Issues." There you will find a wealth of information… Continue reading Support and community for parents of tube-fed children
On message boards across the web you can find, far too easily, cringe-inducing posts by moms skewering each other's parenting styles and choices--battles over breastfeeding versus formula-feeding and catfights about co-sleeping and cribs, and that's just the tip of the judgemental iceberg. This sad reality is partly why, even though it was necessary to ensure… Continue reading The truth about moms