Behold: Tube weaning research and guidelines

When is the last time a research paper made you cry? Around the time of Stella's wean, and since then, I've come across information that moved me on many levels. I'd like to pass along these sought-after papers to as many parents (of children and babies with feeding aversions and NG tubes or g-tubes) as… Continue reading Behold: Tube weaning research and guidelines

Nine months

So, Stella has been outside the womb for just about as long as she was in it. This seems like a big milestone to me and my uterus. Stells (that's not a typo--it's one of our nicknames for her) celebrated her nine-month birthday on Sunday. The occasion was marked with a Waterbabies class (with a… Continue reading Nine months

A drum roll seems inadequate

Today, we took a big step. It could save us a few hundred bucks a month while providing Stella with a better form of nourishment. OR IT COULD RUIN EVERYTHING. You see, Stella's formula is no longer covered by insurance. The really insane part of all this? Regence covered the formula when it was fed… Continue reading A drum roll seems inadequate

Meet Diego

Back in mid-November, when Stella's NG tube was put into her cute nose and down into her then-hungry and confused tummy, I was understandably freaked out. I wondered if it was the right thing to do. I worried about how it would affect her. So I did the worst possible thing I could do. I… Continue reading Meet Diego

My other resume

I've jumped back into the freelance writing life in an effort to make a bit of money while I stay home with Stella Bella. This, of course, necessitated the updating of my resume. It got me thinking. Some of my most impressive achievements and abilities will never grace the pages of this supposedly all-important document.… Continue reading My other resume

Tube-free Stella: Day 3

Stella is aptly named. Today we received an effusive outpouring of support. From a stranger with whom we'd never spoken but who'd seen Stella with the tube and couldn't stop gushing about how happy she was to see her without it. From two shop clerks whose eyes brightened at the sight of her tube-free face.… Continue reading Tube-free Stella: Day 3

Tube-free Stella: Day 2

Can't sleep so I thought I'd write a quick update. Weaning seems to be going well. Stella is happy and eating pretty often. As is expected over the course of her complete transition from the tube to the bottle, her volume will increase over time. I am struggling to let go of my obsession with counting every milliliter… Continue reading Tube-free Stella: Day 2

Tube-free Stella: Day 1

Stella is off and running. I am so proud of her. In short, she is responding well and our confidence is growing. She can do this. It is expected that she will lose a little bit of weight. I am on strict instructions to NOT WORRY about how much she eats or when. To NOT PANIC if she… Continue reading Tube-free Stella: Day 1

The tube is out. I repeat: The tube is OUT.

And we are leaving it out. This weekend, I sent Stella's pediatrician and occupational therapist an email outlining my concerns about the tube and research to back up those concerns. Today, they agreed to a tube-free "trial." Her doctor said two to three weeks without the tube would be "low risk" given how healthy she… Continue reading The tube is out. I repeat: The tube is OUT.

The stubborn determination of hope

Good news. Stella is back to taking in about half of her daily calories from the bottle, just as she did before the recent regression. However. My feeling is that the tube is preventing her from recovering completely. I believe that it exacerbates her reflux and makes swallowing more difficult. I found and paid for two medical… Continue reading The stubborn determination of hope